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Re: New accomplishments? How is your kid doing?

Posted: Sun Jun 13, 2010 9:52 am
by lulubelle21
Liz - that is ironic!!!! I love it. I can't wait for my son to tell me I am beautiful. Of course if I took off the baseball cap, took my hair out of a ponytail and made myself look presentable maybe he would. LOL!!!!!

Re: New accomplishments? How is your kid doing?

Posted: Sun Jun 13, 2010 7:29 pm
by Liz77
lulubelle21 wrote:Liz - that is ironic!!!! I love it. I can't wait for my son to tell me I am beautiful. Of course if I took off the baseball cap, took my hair out of a ponytail and made myself look presentable maybe he would. LOL!!!!!


I had just woken up, I had my glasses on, was wearing DH's old stained high school hockey tee shirt, and my hair was standing up on end. He was just being sweet.

Re: New accomplishments? How is your kid doing?

Posted: Fri Jul 02, 2010 7:05 pm
by Dani
My daughter's summer preschool class went to a therapeutic horseback riding farm today. It was an amazing place. The place is run by a family and about 200 volunteers. The volunteers have a lot of training on how to interact with special needs people.

The farms has pigs, pigeons, goats, cows, dogs, minature horses and regular horses. All animals there were very approachable and very people oriented. My daughter had a lot of fun. The two typical boys in her class were scared of the horses and it took a lot of coaxing to get them to ride, but she was just the opposite. It's interesting how the kids you expect to react a certain way don't and the ones you think will be fine aren't.

As soon as we got there, she walked up to a corral that had probably the friendliest horse I've ever encountered. From that moment on it was nothing but "I want to ride the horse" "I want to climb on the horse" and "Open the gate for me." :lol:
When it was her turn, she got to ride the horse for 15 solid minutes. They got her to do all sorts of things on the horse to encourage physical movement. She got to ride the horse while facing backwards. She did all sorts of arm exercises while on the horse. It's a lot of midline crossing work. It's great OT work and you're having fun.

Overall it was a really cool experience. We're going to be signing up for the therapeutic horseback riding classes next month.

Re: New accomplishments? How is your kid doing?

Posted: Wed Jul 21, 2010 8:45 pm
by Dani
We've had some interesting developments here. Her memory is so much better. She recalls things better. She's more aware of her environment. She notices things that in the past she wouldn't have.
She also does things she wouldn't have in the past. She came to me with my swimsuit (I don't know how she found it!), gave it to me, and said she wanted to go to the beach to swim. She understood I had to get dressed in my own swimwear if she wanted to go to the beach. She told me to open the door, go to the car and drive to the beach. That kind of talk where she tells me things to do is becoming more commonplace now. She also remembers places a lot better, even places we go to once in a while. I never thought she'd remember these unremarkable looking buildings that we visit once in a blue moon, but she does. She's more interested in her clothing. She asks to wear specific clothing. She doesn't ask in a way that indicates sensory issues. It seems more like a preference much like a typical child would exhibit. For example, recently I put her in her pink striped pajamas, but she told me she wanted the yellow butterfly pajamas instead. The yellow pjs weren't in front of her at the time she asked for them. I had them downstairs in the dryer.

She still has her verbal stims though. Her current favorite is "Barney and friends has been made possible by contributions to this station by viewers like you." :lol:

Re: New accomplishments? How is your kid doing?

Posted: Wed Sep 22, 2010 2:20 pm
by slesage
Yesterday my son came home from school and went to the playroom and starting playing with his Zambonis and ice rink. Our dog went to lay right in the middle of it. My son looked at me and then at the dog and said "Maggie I am playing here". :P

Re: New accomplishments? How is your kid doing?

Posted: Sat Oct 30, 2010 9:36 pm
by vnm4flan
Nelson attended the homecoming dance and had a great time. His sister did keep an eye on him but he handled himself well. Apparently he was a good enough hit with the ladies that they were the ones asking him to dance :-)

What has really helped this year is that we switched him to the same high school as his sister. Not that she does a lot but I guess it is enough for him to relax and actually interact easier with people. He has made a few friends specially in the marching band were he plays the flute.

This weekend he got invited to two different Halloween parties and decided on visiting with a friend and going to a fall festival.

Cheers,

Re: New accomplishments? How is your kid doing?

Posted: Sat Nov 20, 2010 2:13 pm
by Dani
I love reading the updates. It's so wonderful to read the progress. :lol:

My daughter in preschool can independently write her first name and is learning to write her last name. She's making progress in math as well. If you give her ten objects and ask her to give you three or five or however many, she will do it accurately. She understands the concepts of more or less "are there more boys today in the class or less?"
She's starting to expand her requests for help. Before she would say something like "I need help", but now she says "Mommy, I need help to open the toy box."

She has been potty trained for daytime for nearly two years, but at night she doesn't wear a pullup anymore. She seems to have night trained herself. There have been times she has gotten up at night to use the bathroom. I'm cautiously optimistic that we can ditch the pullups for night time.

Re: New accomplishments? How is your kid doing?

Posted: Thu Jan 06, 2011 8:36 am
by DianeM2
Christopher has been very hyper lately, and more stimming. WE havent changed any supplements. We did change schools, where now he is NOT receiving OT services, but has access to the gym, and many other activities such as a trampoline.
Getting really frustrated because it has effected our potty training.

Re: New accomplishments? How is your kid doing?

Posted: Thu Jan 27, 2011 7:00 pm
by twinsohmy
I should have posted here months ago, but everytime we get what I think will be a WOW it goes away and I end up telling everyone that I THOUGHT she started talking...anyway some good news to report! After starting AC chelation one of my daughters started talking, she only had 1 maybe 2 words prior, now after 30 rounds she has too many to count, is starting two words phrases and singing songs and making these unbelievable cognitive connections (she was cold after her bath the other day and said blanket). My other daughter soared in her gross motor skills right after starting AC, she didn't start walking until 21 months so gross motor has always been a big deal for her. She is now climbing like a goat and has this amazing glint in her eyes and is figuring out how to do what SHE wants to do WHEN she wants to do it and how to get around us to do it. Amazing when a couple of years go we really didn't know if she knew people were in the room with her. Along with AC, we have also had some good success with ABA therapy and are seeing the girls really opening up with new skills and playing with more and varied toys. Classical homeopathy has helped with awareness and emotional response as well. We are still always searching for new things to add but feel that we are on the right track. Anyway, just wanted to share, I love reading this thread everytime someone has something new to report, it gives me hope!

Re: New accomplishments? How is your kid doing?

Posted: Tue Feb 01, 2011 1:40 am
by Liz77
We were visiting friends and S. went sledding with their 8 year old son. He dressed himself in all his outer gear, grabbed a sled, walked the two hundred yards to the sledding hill, and went sledding for two hours. My friend's husband was outside shoveling and kept an eye on the kids. I sat inside and drank coffee and talked with my friend. S. came in with his friend and two neighbor kids around his age. They played for another hour or so. There was no crying, no whining, no freaking out when snow got in his boot, no hurt feelings, and other then checking food labels when lunch was made, no need to accommodate S.
Well. I did have to remind him not tell his friend's older brother how to play the video game.

Re: New accomplishments? How is your kid doing?

Posted: Tue Apr 05, 2011 8:53 pm
by Dani
We did something we never thought we'd do. Take our 5 year old child on a plane ride. We were on pins and needles the whole time wondering if she would react to all the noise from the jet engines. She was totally fine on the plane. Very minimal fussing. Sat in her seat. Had the seatbelt on the whole time. Looked out the window. I don't think anyone could really tell she was on the spectrum. Granted, it was a short flight of about 40 minutes, but we did that on purpose so she wouldn't be overwhelmed the first time around. I think a few more of these shorter flights and we'll be ready for a cross-country trip.

Re: New accomplishments? How is your kid doing?

Posted: Wed Apr 27, 2011 6:42 pm
by Gabesmom
I think my son was four years old the last time I posted here. He just turned eight last week, so it's been quite a while. For those of you with preschoolers, I can attest to the fact that it sometimes seems like progress is so slow. There were times that I felt that my son would never communicate in any really meaningful way or that he would never share his interests with us- that we would always been on the outside looking in. However, after four years, it's amazing to reflect on how much has truly changed. Gabriel can now have real (albeit short) conversations with others, can answer almost any question appropriately (though not always accurately), is very excited to share his accomplishments with others, asks tons of "why" and "how" questions, has dramatically increased the number of his interests (he used to be almost completely limited to writing words and sentences), and is much more aware of what is going on in his environment and is willing to participate in shared play with his family. He is still very much autistic, but we are working hard to help him use his strengths to overcome his weaknesses. I know that everyone attributes their child's progress to different factors, but I am convinced that all autistic children make progress, and finding what works for your child is a continual process.

Re: New accomplishments? How is your kid doing?

Posted: Sat Apr 30, 2011 12:01 am
by Dani
That's a great update, Gabesmom. So happy to hear it. Keep up the good work!

Re: New accomplishments? How is your kid doing?

Posted: Fri May 20, 2011 3:22 pm
by FuzzyOne
it's been a while since i've posted. i gotta say - reading everyone's updates are thrilling! i am so proud of all of our kids!!!!

our boy is doing fabulous lately :) he has flown through letter id, both lower and upper, plus identifying letters based on their sound. we've mastered out filling in the first letter of a three letter word and we are almost done with filling in the last letter - next will be the vowels, which is hard!!! he is doing some sight reading too. he is speaking in two and three word sentences and has started commenting, not just requesting - huge leap for him :) play skills are still increasing, which is really thrilling to see. he still has a profound language delay, but he is making such an effort to communicate with us and it makes us so happy. he is learning how to use the iPad and i can tell it's going to open his world.

ok - so the biggest one. we are potty training (he will be 6 in july). we are on day ten of a pretty intensive potty training boot camp. he just figured out, two days ago, that he can pee on command (lol!) and that was our huge turning point. he's only had one accident today, but 7 or 8 successes!!!! he only wears a pull-up for nighttime sleep (we put it on after he falls asleep) but he is waking up dry anyway. i can't believe it! i am super excited by this. my goal for him was day time trained by age 7, so this is awesome. i truly truly lover my son's autism school and am going to be so very sad when he ages out in a year.

oh - at his IEP a week ago they told me that we would probably remove cognitive goals for him when he starts kindy in the fall because what he is working on is what the gen ed kindergartners are working on. that was really exciting to hear (i'm not going to let them remove those goals, but still...).

Re: New accomplishments? How is your kid doing?

Posted: Sat May 21, 2011 2:44 pm
by Dani
Fuzzy -Hooray!! Those are wonderful accomplishments. :D

My 5.5 year old is now nighttime potty trained. We can't take credit for this. We didn't actively try to night train her. If she had wanted to stay in pullups at night for another two years or so, we would have been ok. I give her all the credit for the night training. At some point between 4.5 - 5 years, she just seemed to understand that she had to get up to use the bathroom at night or hold it until morning. I thought it would take her much, much longer to get this concept.

Re: New accomplishments? How is your kid doing?

Posted: Sat Jul 02, 2011 11:13 am
by Krabbypatty
My son is doing very well! He will be 10 in just under two weeks time. He's in a mainstream classroom with minimal aide supports, as we have been actively phasing it out for the past couple of academic years. The time of school that challenges him the most is lunchtime and lunch recess. LOTS of stimulation during those times! Smells, noise, tons of kids--it's a lot for even a typical child.
His social struggles are decreasing over time. He now has playdates, which were pretty undoable for a few years. For one thing, he didn't especially care one way or the other if other children came over. Now, he has taken matters into his own hands by swiping my cell phone, looking up his buddy's mom's number and calling her himself. :lol: I was pretty amazed the first time that happened!
My boyfriend's son is three years older than my son and just left today after a three week visit. He and my son played video games together a LOT over those three weeks as well as just hanging out and playing in the pool. I am very pleased with how well they got on! We still monitor activities, but honestly, not much. The older boy was very impressed with my son's abilities on video games and learned a thing or two himself. Sweet!
I don't worry too much about my son's future. He has progressed so much since his diagnosis so many years ago. He dresses himself, picks up after himself and remembers when he has something important coming up. To me, these skills are just as important as academics and social skills, and they are what he will need to live independently one day. He has taken an interest in cooking and food preparation, so we have begun to teach him how to read and follow directions. It's a wonderful thing to have brownies made by your child. :)
I hope that everyone has a wonderful story to tell here. It's what keeps other parents going!
Take care!

Re: New accomplishments? How is your kid doing?

Posted: Mon Jul 11, 2011 4:03 pm
by lookingforanswers
Gabesmom, thanks for the update -- sorry I just saw it. I hope you post again soon. It's great to hear those stories from the older kids.

My son has done very well over the years. No more aggression, which was a major problem when I joined. His receptive and expressive speech are now normal and age-appropriate. At his last IEP meeting, we were told to prepare for a phase-out of services, but I'm hoping to cling to the IEP because it will help for things like high school.

Re: New accomplishments? How is your kid doing?

Posted: Fri Jul 29, 2011 4:41 pm
by Dani
I love this thread. On days where I feel down, I read this thread and I get more hopeful.

lookingforanswers - I'm so glad parents of older ASD kids post here. It really give us those of us with younger children something to look forward to. :D

Re: New accomplishments? How is your kid doing?

Posted: Tue Sep 20, 2011 11:25 am
by frivera28
I am hesitant to post this since I never know when the other shoe will drop...But hopefully this helps someone else.

My son is doing very well and on track with the plan we put in place for him. He is 6 (August birthday) and he entered a mainstream kindergarden 2 weeks ago. He has no aide and the only support he gets is in aftercare. His therapist was with him all day for the 1st week of school to help with the transition. He seems to like school and tells us about his day.

Yesterday I met with his kindergarden teacher and she told me he is doing well and just needs to be prompted to pay attention. This was great news and I didn't know what to expect when I asked how he was doing. Academically he can read and write and can add and subtract, so I think he will be fine. His major issue is focus and being able to keep up in a conversation. He loves sports and is in a typical basketball program.

Currently we are only doing AC chelation and GFCF diet along with supplements.

Thanks to everyone who posts on this message borad and other place on the internet. I know I would not have been able to create a therapy and biomedical plan with the internet and all the great information.

Re: New accomplishments? How is your kid doing?

Posted: Thu Nov 03, 2011 9:04 pm
by Dani
We had a meeting with the kindergarten teacher and other members of the school team who work with our child. She's doing well. She's mastered several IEP goals and if she continues at this pace we may revise the IEP in the middle of the year.

The most exciting development is she is initiating some social interactions with typical peers unprompted by any adult. It's nowhere near the amount we'd like her to initiate, but now she actually asks them to play with her, she asks things of them whereas previously she would be more neutral about playing with another child. The school felt it was a really good development. I agree.