Re: Sarasota Memorial Hospital Study - 94% Effective on Autism Only Diagnosis

Discuss getting a diagnosis, educational help & electronic devices and apps for autism.

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Winnie
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Re: Sarasota Memorial Hospital Study - 94% Effective on Autism Only Diagnosis

Postby Winnie » Wed Oct 05, 2016 8:05 am

***Edited to add: mbruback initiated this thread with the associated thread title. He removed his original post on 10/9. Follows is his original post, quoted in full, with which he opened this topic.

mbruback wrote:Wanted to share new information since I reached out to many other autism organizations who wouldn't share... why? It's beyond me... the facts are the facts. The study proved the Sensory Belt 94% effective on children with an autism only diagnosis and 82.6% effective overall.

The hospital has now moved forward to do a larger study since the results were so positive. Would have liked to added the research via an attachment but this will have to do.

Please share the data with friends, families and care givers.

-------------------------------


Sarasota Memorial Health Care System
Autism Research Study Results
on the
Effectiveness of the Sensory Belt™
in
Alleviating symptoms of autism, Autism Spectrum
Disorder (ASD), and/or Sensory Processing Disorder (SPD)

(September 8, 2016)


**This report does NOT include any personal information**

Table of Contents
Page #
Executive Summary 1
Study Details 2
Description of the Study 2
Description of Face Autism 2
Description of the GAP School 2
Description of the Therapeutic Device 3
Criteria for Study Inclusion 3
Demographics of Participants Completing the Study 3
Size of Sensory Belts Used in Study 3
Formal Diagnosis of Participants 3
Findings 4
General Observations 4
Benefit Percentages by Demographics 4
Benefit Percentages by Size of Sensory Belts Used in Study 4
Benefit Percentages by Formal Diagnosis of Participants 5
Notable Comments from Parents/Caregivers 6
Addendums
Documentation Sheet A
Abstract – Weighted Belt to Use to Reduce ADHD Symptoms B


Executive Summary

The Sarasota Memorial Health Care System provided a grant for an autism research study of the effectiveness of the Sensory Belt™ when used by children with autism, autism spectrum disorder, and/or sensory processing disorder. The study was conducted over a two week period and began August 22, 2016 and completed September 6, 2016. The study included 28 participants with 23 participants completing the study. The overall success rate, parents/caregivers seeing benefits from the participants completing the study, was 82.6%.

This report includes study details describing the study, description of participants, description of the therapy aid used (Sensory Belt™), criteria for inclusion to the study, and demographics of participants. Also, the report includes findings which include general observations, success rates for each demographic category, and notable comments from the parents/caregivers of study participants.
Two addendums to this report have been added. The first addendum is the documentation sheet used by the parents/caregivers of participants to note initial ratings of multiple deficits and ratings after the use of the therapy aid during the two week study period. The final addendum is an abstract of a study conducted in 2012 with children dealing with the symptoms of ADHD and the results which closely align with the results seen in this study.


Page 1

Study Details

Description of the Study:

The autism research study was funded by the Sarasota Memorial Health Care System and was organized by Face Autism with the assistance and support of The GAP School to test the effectiveness of using the Sensory Belt™ with children to alleviate symptoms caused by autism, autism spectrum disorder (ASD), and/or sensory processing disorder (SPD). The two-week study began on August 22, 2016 with Sensory Belt™ and instructions provided to the parents. The study ended on September 6, 2016 with the completion of the documentation sheet (Addendum A of this report) which provided the results of parental observations as well as comments from parents. The documentation sheet includes the initial ratings of parents/caregivers of the severity of deficits including auditory (sensitivity to sounds), emotional/social behavior (anxious/hyperactive), fine motor skills (coloring/drawing/writing), proprioceptive function (body awareness), tactile function (sensitivity to clothing/textures), and vestibular (movement and balance). Upon completion, the parents/caregivers provided a rating on each category and an overall rating. The overall ratings provided were used to determine whether or not use of the Sensory Belt™ was helpful in alleviating symptoms.

Upon announcement of the study by Face Autism a total of 36 potential participants indicated an interest to take part in the study. There were 28 participants of which 27 participants met the criteria and whose parents/care givers completed the sign-in sheet, completed the initial current symptoms severity rating on the documentation sheet, and received a Sensory Belt™ to fit their child on August 22, 2016.
The study was completed with the parents/caregivers of participants noting the symptoms severity rating, with some providing comments, from their observations of the use of the Sensory Belt™ beginning on September 6, 2016 under the supervision of Allison Lauderdale, MPH, BSN, RN, the Grant Coordinator of the Sarasota Memorial Health Care System. Of the 27 initial participants meeting the criteria (noted below) 23 participants completed the study.

Description of Face Autism:
Face Autism, Inc. was created in 2009 to provide sensory friendly activities, support groups, referral for therapeutic services, structured classes, and other necessary resources for children with autism.

Description of the GAP School:
The GAP School is one of the Sarasota, Florida premier K-12 social skills, sensory integration, and bully free schools for special needs children.


Page 2

Description of the Therapeutic Device:
The Sensory Belt™ is a weighted therapy belt which promotes self-calming, balance, and increased body awareness. There are six sizes available for infants to adults.

Criteria for Study Inclusion:

There were four (4) criteria for participation in the study.

1. Child has a formal diagnosis of Autism, Autism Spectrum Disorder, or Sensory Processing Disorder.
2. Child is between the ages of 3 years old to 18 years old.
3. Child has never used a weighted therapy belt.
4. Child is not suffering from an illness or on any medication.

Note: There would have been 28 participants but one child was 25 years old and over the age limit of 18 years old. This child was provided a Sensory Belt™ but not included in the total number of participants. Of the 27 initial participants meeting the criteria there were 23 participants who completed the study.

Notable: Four (4) families had two (2) children participate.

Demographics of Participants Completing the Study:

Ages Amount

3 to 7 years old 10
8 to 13 years old 9
14 to 18 years old 4

Gender Amount

Male 22
Female 1


Size of Sensory Belts Used in Study

Sensory Belt™ Size Amount

MB101 (1lb) 0
MB202 (2lb) 5
MB303 (3lb) 8
SB404 (4lb) 6
SB505 (5lb) 2
SB606 (6lb) 2

Formal Diagnosis of Participants:

Diagnosis Amount

Autism Only 17
Autism and Sensory Processing Disorder 3
Autism and ADHD 1
Autism and Down Syndrome 2


Page 3

Findings

General Observations:

Of the 23 participants completing the study, 19 experienced benefits from using the Sensory Belt™ during the study period. This results in an overall success rate for 82.6% of participants with observable benefits by parents/caregivers. Interestingly, 100% of the 13 participants using the two or three pound Sensory Belt™ indicates the importance of early intervention to help improve educational outcomes and sensory development.

The overall percentage of participants experiencing benefits (82.6%) from wearing the Sensory Belt™ closely resemble the results from a study conducted in 2012 by Cranberry Consulting in Cambridge, Massachusetts. Their study documented an 80% success rate for children with ADHD (8 out of 10 study participants) and was presented to the American Occupational Therapy Association (AOTA) annual conference. A copy of the abstract may be found at Addendum B of this report and the full study results are available upon request.

Benefit Percentages by Demographics:

Gender Amount Experienced Benefits Success Rate

Male - 22 18 81.8%
Female - 1 1 100%

Ages Amount Experienced Benefits Success Rate

3 to 7 years old - 10 9 90%
8 to 13 years old - 9 7 77.8%
14 to 18 years old - 4 3 75%

Benefit Percentages by Size of Sensory Belts Used in Study:

Sensory Belt™ Size Amount Experienced Benefits Success Rate

MB101 (1lb) 0 N/A N/A
MB202 (2lb) 5 5 100%
MB303 (3lb) 8 8 100%
SB404 (4lb) 6 4 66.7%
SB505 (5lb) 2 1 50%
SB606 (6lb) 2 1 50%


Page 4

Benefit Percentages for Formal Diagnosis of Participants:

Diagnosis Amount Experienced Benefits Success Rate

Autism Only 17 16 94.1%
Autism and Sensory Processing Disorder 3 2 66.7%
Autism and ADHD 1 0 0%
Autism and Down Syndrome 2 1 50%


Page 5

Notable Comments from Parents/Caregivers Following Study

Participant #1: “Devin was able to sit and attend a movie without getting up every 5 minutes.”

Participant #3: “ I’ve tried everything and nothing has worked with Isaac. Improvement: Focus increased, attention increased, awareness increased, follow directions, eye contact increased.”

Participant #7: “Repetitive behavior and echolalia greatly reduced while using the belt.”

Participant #8: “Stayed still. Doesn’t run away as often. Began potty training. Began pretend play.”

Participant #11: “We noticed Kolbe was able to stay focused for a longer period of time especially when it came to homework.”

Participant #16: “He was able to recover his composure much faster after changes in routine. He was able to focus during homework and better able to ignore minor to moderate distractions. If he wore it for 30-45 min before bedtime he seemed to fall asleep faster.”

Participant #17: “Definitely, he seemed calmer. Was told at school 3X he seemed much calmer + Focused. (Which they don’t always do.)

Participant #18: “Less scripting, more attentive + easier to learn new things. More in our world.”

Participant #22: “It calmed his hyperactive time of the day.”

Participant #31: “He seemed calmer + more able to focus. He would wear the belt for 15 mins at a time and I was able to see the difference in his behavior.”

Participant #34: “Michael had better balance and more confidence when wearing the belt.”


Page 6

Addendum A

Document #: ____
DOCUMENTATION SHEET
Autism Research Study

Diagnosis: ________________ Age: _____ M/F: _____


August 22nd 2016 – Start Date

What are your child’s most notable deficits/symptoms? Please explain.




Does your child have any triggers? Yes / No If Yes, please explain.


Please rate your child between one (1) showing no deficit and ten (10) showing severe deficits

Auditory (Sensitive to Sounds): 1 2 3 4 5 6 7 8 9 10

Emotional/Social Behavior (Anxious/Hyperactive): 1 2 3 4 5 6 7 8 9 10

Fine Motor Skills (Difficulty Coloring/Drawing/Writing): 1 2 3 4 5 6 7 8 9 10

Proprioceptive Function (Body Awareness): 1 2 3 4 5 6 7 8 9 10

Tactile Function (Sensitive to Clothing/Textures): 1 2 3 4 5 6 7 8 9 10

Vestibular (Movement & Balance): 1 2 3 4 5 6 7 8 9 10

Overall Rating: 1 2 3 4 5 6 7 8 9 10

Note: If for some reason your child experiences any discomfort when wearing the Sensory Belt, also known as the Miracle Belt, please discontinue use immediately and contact us for further details.


Sept 5th 2016 – Final Evaluation

Did your child benefit from using the Sensory Belt? Yes / No

If Yes, where did you see the most benefit/improvement? Please explain.




Please rate your child between one (1) showing no deficit and ten (10) showing severe deficits

Auditory (Sensitive to Sounds): 1 2 3 4 5 6 7 8 9 10

Emotional/Social Behavior (Anxious/Hyperactive): 1 2 3 4 5 6 7 8 9 10

Fine Motor Skills (Difficulty Coloring/Drawing/Writing): 1 2 3 4 5 6 7 8 9 10

Proprioceptive Function (Body Awareness): 1 2 3 4 5 6 7 8 9 10

Tactile Function (Sensitive to Clothing/Textures): 1 2 3 4 5 6 7 8 9 10

Vestibular (Movement & Balance): 1 2 3 4 5 6 7 8 9 10

Overall Rating: 1 2 3 4 5 6 7 8 9 10


Page 7

Addendum B

Please visit the http://www.sensorybelt.com FAQ page for this additional study findings.


-----------------------------------------

Research in full: http://www.sensorybelt.com/sensory-belt-autism-research.pdf
Last edited by Winnie on Tue Oct 11, 2016 12:14 pm, edited 2 times in total.
Winnie
"Make it a powerful memory, the happiest you can remember."

Winnie
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Joined: Sat Mar 18, 2006 2:48 pm

Re: Sarasota Memorial Hospital Study - 94% Effective on Autism Only Diagnosis

Postby Winnie » Wed Oct 05, 2016 8:41 am

mbruback wrote:Wanted to share new information since I reached out to many other autism organizations who wouldn't share... why? It's beyond me... the facts are the facts. The study proved the Sensory Belt 94% effective on children with an autism only diagnosis and 82.6% effective overall.


Why you ask?

If your marketing has been rejected by some sites, it is probably because many sites do not allow advertisement.

The first flag is your claim that your “study proved,” while implying to potential customers (via title of study and inclusion of “Sarasota Memorial Health Care System Study of Sensory Belt™” on every single page) this is a study by Sarasota Memorial Health Care System. Your “research” has no authors, no apparent design, no methods, no coherent statistical analysis, no publication source (except your sales site), parent testimonials, erroneous conclusions, and no declaration of the obvious conflict of interest. This “research” would be unable to “prove” anything.

Since it would be very, very odd that a hospital or healthcare system would be involved with such a poor paper, a quick google of your username indicates that you are the president of the Miracle Belt, Sensory Belt & Thera-Belt companies. Is that correct?

So let's take a look at some facts.

The Sarasota Memorial Hospital Foundation is an independent philanthropic non-profit org, not the “Sarasota Memorial Healthcare System” you use in your “study” title – foundation mission here:
MISSION STATEMENT

Sarasota Memorial Healthcare Foundation, Inc. is an independent organization founded to raise & distribute philanthropic funds to help improve the quality of healthcare within the greater Sarasota community.


The SMH Foundation^ provided a grant for $2100 to buy 30 “Miracle Belts” (there turned out to be 27 participants, plus one too old who was provided a belt) that would have been purchased (apparently at or above full retail) from your company.

The belts were given to special needs children, and of the 23 of 27 who participated for 2 weeks, their (probably appreciative) parents then completed a survey.

And now this “study” “proving” the effectiveness of the product you sell is passed along to parents under the title of “Sarasota Memorial Health Care System Study of Sensory Belt.”

So according to your fb sales site, on August 11th, you received a grant from a non-profit foundation, to buy “Miracle Belts” from yourself, to do “research” that would benefit your sales, and by September 8th, you published a “study” proving the effectiveness of your product? Less than a month -- it’s a miracle!

And by September 11, the following claims were made on the Miracle Belt, Sensory Belt & Thera-Belt FB sales page:

New Autism study proves the Sensory Belt 82.6% effective in calming and focusing children with autism and SPD. The study proved 94% effective for those with an autism only diagnosis.

Participants who benefited: 19 of 23
Overall percentage: 82.6%

Study Sponsor: Sarasota Memorial Hospital

http://www.sensorybelt.com


So does the Sarasota Memorial Hospital know you are claiming they are the sponsor of your “study?” Does the Sarasota Memorial Healthcare System know you are passing your “study” along under this title:
Sarasota Memorial Health Care System
Autism Study Results

on the
Effectiveness of the Sensory Belt™


And that you include “Sarasota Memorial Health Care System Study of Sensory Belt™” prominently in the footer of every single page of your "study?"

The reason I’m asking is because that gives your customers the impression this was a study either performed or endorsed by their hospital and/or healthcare corporation.

I notice that you include TM following “Sensory Belt,” so you must at least know something about trademark infringement. In that vein, did you get approval from the hospital’s Institutional Review Board for the “study?” Or obtain clearance from the Sarasota Memorial Healthcare System’s legal department to state that your “study” was sponsored by them, or to imply by your title they were involved in performing this study?

That doesn’t seem likely considering the time frame – less than a month from grant award to self “publication” of your study -- though if I have incorrectly framed the facts or misunderstood the endorsement of the hospital, please clarify and provide verification.

Otherwise, in my opinion, it’s a shame that parents might be misled by "research” they presume was carried out or endorsed by a reputable hospital/healthcare system. It’s absolutely possible that this product benefits some children in some contexts – but it’s not new. You have been selling these “Miracle Belts” for over 10 years, right?

In my opinion as a parent, the marketing tactics do not reflect favorably on your company. We parents have plenty of buying opportunities for products pitched on the internet – and we have seen plenty of spun and/or exaggerated claims. You need to do better when trying to lure parents of special needs children who may already be stretched for resources.
Winnie
"Make it a powerful memory, the happiest you can remember."

mbruback
Posts: 9
Joined: Tue Oct 04, 2016 3:34 pm

Re: Sarasota Memorial Hospital Study - 94% Effective on Autism Only Diagnosis

Postby mbruback » Wed Oct 05, 2016 6:22 pm

Winnie... Thank you for your feedback!

SMH Foundation was so impressed they have decided to help 450 local children with the Sensory Belt.

What a blessing to have a Foundation seeking ways to help children with autism then supporting these families in need.

God bless them and those who wish to help others!

mbruback
Posts: 9
Joined: Tue Oct 04, 2016 3:34 pm

Re: Sarasota Memorial Hospital Study - 94% Effective on Autism Only Diagnosis

Postby mbruback » Wed Oct 05, 2016 6:31 pm

Correction in your post Winnie.

The grant/funding for the 30 Sensory Belts was requested and provided to The GAP School in collaboration with Face Autism who helped assist in the study.

Short sighted conclusions and attacks on companies/people trying to better the lives of special needs children is uncalled for.

Let's work together to help these families... they deserve better!

Winnie
Posts: 4227
Joined: Sat Mar 18, 2006 2:48 pm

Re: Sarasota Memorial Hospital Study - 94% Effective on Autism Only Diagnosis

Postby Winnie » Fri Oct 07, 2016 2:34 am

mbruback wrote:The grant/funding for the 30 Sensory Belts was requested and provided to The GAP School in collaboration with Face Autism who helped assist in the study.

Thank you for the clarification. The announcement on your company’s Miracle Belt, Sensory Belt & Thera-Belt fb page, the day the grant was awarded, indicated to me that your company was closely involved with and/or awaiting this grant:
Sarasota Memorial Hospital Foundation came through today with a grant to provide 30 belts for an autism study.


The study results are not published on either the GAP School or Face Autism sites or social media – only on your sales sites. Please clarify – who is/are the author(s) of this study? Is Matt Bruback an author?

mbruback wrote:SMH Foundation was so impressed they have decided to help 450 local children with the Sensory Belt.

What were they impressed with exactly? Is this new grant riding on the results of your “study?” Who is the grant recipient?

So which is it? In your OP you stated “The hospital has now moved forward to do a larger study since the results were so positive“ – are you continuing to conflate the SMH Foundation with Sarasota Memorial Hospital? SMHF is a non-profit org independent from Sarasota Memorial Hospital. Please clarify. Is SM Hospital doing a larger study? Why would they do that if this current study, as you have stated, "proves" the effectiveness of your product?

The previous grant provided funds for belts to be purchased from you at an average of $70 each ($2100 for 30 belts). Honestly, to me this seems steep considering the weight ranges and retail costs for childrens' belts on your sales sites.

At the same cost your company charged the previous grant award -- a grant for 450 belts would total $31,500 – paid to your company, right? Please clarify if this is not the case.

mbruback wrote:What a blessing to have a Foundation seeking ways to help children with autism then supporting these families in need.

Indeed. Sounds like an abundantly blessed profit margin. Will you be charging $70 per belt to the recipients of this grant too?

mbruback wrote:God bless them and those who wish to help others!

Platitudes are not a replacement for the facts and honest answers parents deserve from those advertising and profiting from their childrens' disabilities.
Winnie
"Make it a powerful memory, the happiest you can remember."

Winnie
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Joined: Sat Mar 18, 2006 2:48 pm

Re: Sarasota Memorial Hospital Study - 94% Effective on Autism Only Diagnosis

Postby Winnie » Fri Oct 07, 2016 2:55 am

mbruback wrote:Short sighted conclusions and attacks on companies/people trying to better the lives of special needs children is uncalled for.

Let's work together to help these families... they deserve better!

They sure do. So how do you feel about attacks by companies on parents who are trying to better the lives of special needs children?

Your comments to an autism mom who posted a DIY youtube video -- How To Make A Weighted Belt for Sensory Kids – to replace her son’s Sensory Belt after the buckle broke:

M Bruback 1 week ago (edited)
You are still in violation of our Trademark and we have now escalated this issue.

M Bruback 2 months ago
The Sensory Belt name is trademarked and is not allowed to be used without our permission. You do not have permission to use our registered logo for advertising your video. Please change the title of your video and please do not use our product name in the title of any future videos. Thank you

https://www.youtube.com/watch?v=lu1_liDNaCc


What did you do to this parent last week to “escalate this issue?"

She isn’t selling anything or attempting to profit from belt sales – she is just an autism mom in her kitchen trying to help parents and “better the lives of special needs children.” For free.

So you certainly seem to understand the implications of using a name without permission for the purposes of advertisement. Back to the questions you did not answer regarding this study being depicted/labeled as Sarasota Memorial Hospital’s/ Sarasota Memorial Healthcare System’s study. These questions only require simple, factual responses:

1. Do you have permission from Sarasota Memorial Hospital to claim they sponsored your “study?”

2. Does the Sarasota Memorial Healthcare System know you are advertising this study as theirs via use of this title:
Sarasota Memorial Health Care System
Autism Study Results
on the
Effectiveness of the Sensory Belt™


And via use of “Sarasota Memorial Health Care System Study of Sensory Belt™” -- prominently stated -- as the footer of every single page of your "study?"

3. Who is/are the author(s) of this study, and where may one find their contact info?

4. Most importantly, who may be contacted at either Sarasota Memorial Hospital or the Sarasota Memorial Healthcare System to verify that this is their study? The text of the study states that it was carried out “. . . under the supervision of Allison Lauderdale, MPH, BSN, RN . . .” Is Ms. Lauderdale the appropriate contact to verify that Sarasota Memorial Health Care System and/or Sarasota Memorial Hospital is responsible for this study?
Winnie
"Make it a powerful memory, the happiest you can remember."

mbruback
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Re: Sarasota Memorial Hospital Study - 94% Effective on Autism Only Diagnosis

Postby mbruback » Fri Oct 07, 2016 12:48 pm

Winnie, you have gone about this all wrong! What you should or could have started off with is how amazing the results are and how this study proves the Sensory Belt is an effective way in helping improve the lives of children with autism and sensory disorders.

Since you started off by attacking Sarasota Memorial Hospital Study results and attacking me and my company do you really think you are entitled to have your questions answered?

This will be my last response to you and any negative comments directed towards the Hospital or my company will be addressed with the moderator.

FYI: The US Government created laws to protect brands by the creation of Trademarks. If in violation of these trademarks anyone is liable to the USPTO trademark laws and fines. The mother who was in violation has now honored the law and changed/updated her video title. Your continued attack on a business doing good things for children with sensory needs is very telling about your character.

Winnie
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Joined: Sat Mar 18, 2006 2:48 pm

Re: Sarasota Memorial Hospital Study - 94% Effective on Autism Only Diagnosis

Postby Winnie » Sat Oct 08, 2016 12:57 am

I see that after reading my post today you removed your comments on youtube directed to the autism mom:

M Bruback 1 week ago (edited)
You are still in violation of our Trademark and we have now escalated this issue.

M Bruback 2 months ago
The Sensory Belt name is trademarked and is not allowed to be used without our permission. You do not have permission to use our registered logo for advertising your video. Please change the title of your video and please do not use our product name in the title of any future videos. Thank you

https://www.youtube.com/watch?v=lu1_liDNaCc


So does this mean you intend to cease escalating the issue against this mother, or just conceal your intent for the sake of public appearance?

Also, do you intend to either 1) answer the relevant questions (asked repeatedly) and provide verification regarding the depiction of your study as a "Sarasota Memorial Hospital Study," or 2) Correct your "study" to include author, COI, etc., as well as accurate attribution to the responsible entity?
Winnie
"Make it a powerful memory, the happiest you can remember."

mbruback
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Joined: Tue Oct 04, 2016 3:34 pm

Re: Sarasota Memorial Hospital Study - 94% Effective on Autism Only Diagnosis

Postby mbruback » Sat Oct 08, 2016 9:50 am

Do you plan to cease your useless attacks against the Hospital and my company?

As noted in my last message which you obviously didn't read before spouting out another round of attacks how the mother changed the name of her video to be in compliance with the law.

Are you okay? Makes no sense why you would continuously attack a care giver trying to help families.

I'll pray for you! May God bless you and keep you... Bring peace to you... forgive you... bless you

mbruback
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Re: Sarasota Memorial Hospital Study - 94% Effective on Autism Only Diagnosis

Postby mbruback » Sat Oct 08, 2016 10:22 am

For any curious parents and care givers out there... the study clearly states who funded and coordinated the study.

Link Validating Funding by the SMH Foundation.

http://www.smhf.org/about/grant-list/default.aspx

Study proved the Sensory Belt 82.6% effective in this study which mirrors an ADHD Study completed in 2012 which showed 80% effective in alleviating symptoms.

AspieGenes
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Re: Sarasota Memorial Hospital Study - 94% Effective on Autism Only Diagnosis

Postby AspieGenes » Sat Oct 08, 2016 5:08 pm

mbruback wrote:Do you plan to cease your useless attacks against the Hospital and my company?

As noted in my last message which you obviously didn't read before spouting out another round of attacks how the mother changed the name of her video to be in compliance with the law.

Are you okay? Makes no sense why you would continuously attack a care giver trying to help families.

I'll pray for you! May God bless you and keep you... Bring peace to you... forgive you... bless you


Now that you brought God into this I know it is a scam.

Winnie
Posts: 4227
Joined: Sat Mar 18, 2006 2:48 pm

Re: Sarasota Memorial Hospital Study - 94% Effective on Autism Only Diagnosis

Postby Winnie » Sat Oct 08, 2016 8:57 pm

mbruback wrote:For any curious parents and care givers out there... the study clearly states who funded and coordinated the study.

Link Validating Funding by the SMH Foundation.

http://www.smhf.org/about/grant-list/default.aspx


I previously provided this link in my first post here, along with a link to the SMHF site explaining that they are an independent non-profit. The fact that the SMHF provided a grant to a special needs school, for belts that were then purchased from you, does not verify any involvement or endorsement by the Sarasota Memorial Hospital or the Sarasota Memorial Health Care System for your "study." You still have not been able to even provide the name of the study author.

BTW,the little blue words are hyperlinks. Click them.
Winnie
"Make it a powerful memory, the happiest you can remember."

Winnie
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Re: Sarasota Memorial Hospital Study - 94% Effective on Autism Only Diagnosis

Postby Winnie » Sat Oct 08, 2016 9:42 pm

mbruback wrote:Do you plan to cease your useless attacks against the Hospital and my company?

You seem distressed. Apparently you are not accustomed to a platform where you don't control the flow of information and are not able to delete comments, reviews, and questions that may not be favorable for sales.

I haven't attacked the hospital -- though I wouldn't blame them if they felt a little "attacked" by your use of their good name on such a poor paper. Really, hospitals don't collect parent surveys on the 5th, publish a study by the 8th, and call it "proof" of effectiveness for anything. Really.

As to your question -- no, I don't intend to stop researching the facts and answers to my very reasonable questions, since you have refused to provide these. I think parents of children with autism deserve accurate information -- I am one. So I guess you can just stay tuned in the event you wish to respond.

mbruback wrote:As noted in my last message which you obviously didn't read before spouting out another round of attacks how the mother changed the name of her video to be in compliance with the law.

Okay I see. How wonderful of you to stop intimidating this mother. Blessings all around!

mbruback wrote:Are you okay? Makes no sense why you would continuously attack a care giver trying to help families.

I'll pray for you! May God bless you and keep you... Bring peace to you... forgive you... bless you

Just had to quote this.

Are you now claiming to be a caregiver? The mother you were intimidating on youtube is a care-giver. The members of this forum are all care-givers, parents, and/or people with autism.
Winnie
"Make it a powerful memory, the happiest you can remember."

mbruback
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Joined: Tue Oct 04, 2016 3:34 pm

Re: Sarasota Memorial Hospital Study - 94% Effective on Autism Only Diagnosis

Postby mbruback » Sun Oct 09, 2016 6:57 am

God created everything and gets all the glory unlike those who make accusations without any facts... your argument or attempted argument is purely emotional and irrational.

Let's review the facts because these explain the questions you say I won't answer.

Who sponsored the study? Sarasota Memorial Hospital (SMH)

How do we know this? SMH provided funding for the study (link provided in previous message), the Hospital documented the study, and the Hospital name is on the study.

mbruback
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Re: Sarasota Memorial Hospital Study - 94% Effective on Autism Only Diagnosis

Postby mbruback » Sun Oct 09, 2016 7:29 am

Winni, this is where you are wrong...

Winnie wrote:You seem distressed. Apparently you are not accustomed to a platform where you don't control the flow of information and are not able to delete comments, reviews, and questions that may not be favorable sales.


This isn't about sales... my original post was about educating a population about a useful tool which helps improve the lives of our children. Do you see any links to buy? Any special deals? Any offers for a Belt? No

Your assumption and willingness to attack someone who is trying to share information is appalling and down right unprofessional.

Attempting to smear my company which helps special needs children and doesn't have one complaint on the internet says a lot about both us.

This will continue and you will only show more and more of your true self. A jealous, unhappy, spiteful, angry person whose looking to force her will to control the narrative. You're good at projection.

Accept it... the study results are amazing! 94% of children with an autism only diagnosis benefited from the Sensory Belt in the study and so have thousands of others over the last decade.

To all those parents just joining us... the study was funded by the SMH Foundation and its author mentioned within the study details.

Authored by SMH's Clinical Research Center
http://sensorybelt.com/sensory-belt-autism-research.pdf (Page 2)

I'm sure you won't be able to control yourself Winni and you will come back with something else to try to confuse the parents.

The Hospital funded the research and the study was done in partnership with the Clinical Research Center at the Hospital, The GAP School (who allowed participants to meet at the school to pick up the belts) and Face Autism (who helped gather local autism participants).

Winnie
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Re: Sarasota Memorial Hospital Study - 94% Effective on Autism Only Diagnosis

Postby Winnie » Sun Oct 09, 2016 1:12 pm

mbruback wrote:God created everything and gets all the glory unlike those who make accusations without any facts... your argument or attempted argument is purely emotional and irrational.

Let's review the facts because these explain the questions you say I won't answer.

Who sponsored the study? Sarasota Memorial Hospital (SMH)

How do we know this? SMH provided funding for the study (link provided in previous message), the Hospital documented the study, and the Hospital name is on the study.


Let's do review the facts:

No, SMH did not provide funding for the study, the Sarasota Memorial Hospital Foundation provided $2100 to the Gap School (the entity that applied for the grant, according to you) for the purchase of belts, from you, @ $70 each. It has been established and linked to repeatedly on this thread that the SMHF is independent from SMH.

I'm not sure you realize that your association with the Gap School in spearheading their fundraising efforts, in the capacity of "Campaign & Event Coordinator/Fundraiser" (your words), in order to subsequently buy belts from you, for a "study" published by you, that is used to market your product, is a significant conflict of interest were any "research" would be concerned.

Legitimate research makes a declaration of any potential COI, and there are many here.
Winnie
"Make it a powerful memory, the happiest you can remember."

Winnie
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Re: Sarasota Memorial Hospital Study - 94% Effective on Autism Only Diagnosis

Postby Winnie » Sun Oct 09, 2016 1:55 pm

mbruback wrote:Winni, this is where you are wrong...

Winnie wrote:You seem distressed. Apparently you are not accustomed to a platform where you don't control the flow of information and are not able to delete comments, reviews, and questions that may not be favorable sales.


To all those parents just joining us... the study was funded by the SMH Foundation and its author mentioned within the study details.

Authored by SMH's Clinical Research Center
http://sensorybelt.com/sensory-belt-autism-research.pdf (Page 2)

I'm sure you won't be able to control yourself Winni and you will come back with something else to try to confuse the parents.

Well this explains why you removed your original post on this thread -- since this mention was not in it. You changed it and are now pretending it was there all along. That doesn't exactly inspire confidence in your story here.

Please note that before I commented on this thread I quoted your original post in full. "Confused parents" may look at page 2 of your "study" -- quoted in full -- in the (now) first post in this thread. I also have the archived version that you originally directed us to on your sales site in the event anyone is interested.

mbruback wrote:This isn't about sales... my original post was about educating a population about a useful tool which helps improve the lives of our children. Do you see any links to buy? Any special deals? Any offers for a Belt?

Your original post linked to your sales site twice. Please see your original post quoted in full -- (now) first post in this thread.

Authors are people -- so, for the sake of us "confused parents," please provide the contact at SMH's Clinical Research Center who can provide verification that someone at the SMH Clinical Research Center authored your paper. You have dodged this question repeatedly, so I cannot accept your word on this -- especially since your paper is not at all approaching what any clinical research entity would author. You do not appear to know enough about research to even know what you don't know.

Did they also give you permission to very prominently display the Sarasota Memorial Health Care System's logo on the head of your paper as you have done elsewhere on the internet? You know, this one:

Image

Since you were telling us all about laws and all after you "escalated" your attack on the youtube mom of the child with autism.

I guess you think parents are stupid too. ;)
Winnie
"Make it a powerful memory, the happiest you can remember."

Winnie
Posts: 4227
Joined: Sat Mar 18, 2006 2:48 pm

Re: Sarasota Memorial Hospital Study - 94% Effective on Autism Only Diagnosis

Postby Winnie » Sun Oct 09, 2016 4:04 pm

mbruback wrote:Your assumption and willingness to attack someone who is trying to share information is appalling and down right unprofessional.

Attempting to smear my company which helps special needs children and doesn't have one complaint on the internet says a lot about both us.

This will continue and you will only show more and more of your true self. A jealous, unhappy, spiteful, angry person whose looking to force her will to control the narrative. You're good at projection.


Actually, I have been very patient with your ad hominem attacks and name-calling.

What I am pretty decent at is google -- speaking of which, fyi -- you may want to "escalate" your efforts to remove damaging info on some sites that come up in searches. It doesn't appear that you are in any position to attack character, and frankly, it belies your fluffy platitudes.

I will continue to exercise restraint -- I am interested in facts and answers, not swapping insults.
Winnie
"Make it a powerful memory, the happiest you can remember."

Winnie
Posts: 4227
Joined: Sat Mar 18, 2006 2:48 pm

Re: Sarasota Memorial Hospital Study - 94% Effective on Autism Only Diagnosis

Postby Winnie » Sun Oct 09, 2016 11:50 pm

Winnie wrote:
mbruback wrote:Winni, this is where you are wrong...

Winnie wrote:You seem distressed. Apparently you are not accustomed to a platform where you don't control the flow of information and are not able to delete comments, reviews, and questions that may not be favorable sales.


To all those parents just joining us... the study was funded by the SMH Foundation and its author mentioned within the study details.

Authored by SMH's Clinical Research Center
http://sensorybelt.com/sensory-belt-autism-research.pdf (Page 2)


I'm sure you won't be able to control yourself Winni and you will come back with something else to try to confuse the parents.

Well this explains why you removed your original post on this thread -- since this mention was not in it. You changed it and are now pretending it was there all along. That doesn't exactly inspire confidence in your story here.

Please note that before I commented on this thread I quoted your original post in full. "Confused parents" may look at page 2 of your "study" -- quoted in full -- in the (now) first post in this thread. I also have the archived version that you originally directed us to on your sales site in the event anyone is interested.


I also note in your new edited version that you deleted:

"... under the supervision of Allison Lauderdale, MPH, BSN, RN, the Grant Coordinator of the Sarasota Memorial Health Care System."

Earlier in the thread (this post) I asked if Ms. Lauderdale would be the proper contact to verify that Sarasota Memorial Health Care System and/or Sarasota Memorial Hospital is responsible for this study. You did not respond to that question.

Why did you delete this information?
Winnie
"Make it a powerful memory, the happiest you can remember."

mbruback
Posts: 9
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Re: Sarasota Memorial Hospital Study - 94% Effective on Autism Only Diagnosis

Postby mbruback » Mon Oct 10, 2016 1:23 pm

What are you talking about Winni? Everyone can clearly see the information below is still in the original post. You are so focused on slandering me and my company you are missing the whole point.

Winnie wrote:I also note in your new edited version (of today) that you deleted:

"... under the supervision of Allison Lauderdale, MPH, BSN, RN, the Grant Coordinator of the Sarasota Memorial Health Care System."


Please make sure you have all the facts. It's not good to confuse our readers.

One fact which is for sure is how SMH has now moved forward to help 450 children due to the study results.

Thank you for everyone's unwavering support in our mission to help 1,000,000 children with autism and sensory needs.

We couldn't have done this without you!


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