What Are Your Top Six Interventions - Biomed or Otherwise

Discuss autism diets and biomedical treatments of autism.

Moderator: ModeratorBill

Dani
Posts: 2297
Joined: Tue Mar 04, 2008 5:55 am

Postby Dani » Fri Apr 03, 2009 10:23 pm

aisha - don't worry about asking questions. I have one my own to ask after reading the responses.

Sammick - What is/are Theratogs? :wink:
I didn't know how strong I could be until I had to be.

FuzzyOne
Posts: 778
Joined: Sat Jan 03, 2009 1:00 pm

Postby FuzzyOne » Sat Apr 04, 2009 11:59 am

aisha wrote: fuzzy one how is prednisone working out for you guys.


aisha - i started a thread with your name on it about prednisone therapy.

aisha
Posts: 1345
Joined: Wed Nov 16, 2005 3:45 pm

Postby aisha » Sat Apr 04, 2009 1:59 pm

thanks fuzzy, it was great info, keep me posted.

dabaxter
Posts: 4052
Joined: Wed Nov 14, 2007 12:50 pm

Postby dabaxter » Sun Apr 05, 2009 4:47 pm

Top gainers in order:
1. GF/CF/EF diet.
2. Carnosine-GABA combo. (Biggest Wow)
3. ABA
4. Genetic testing/switching from Methyl-B12 shots to Hydroxyl B-12 shots. (Noticeable change in direction for the better)
5. Diflucan back to back to back.
6. CLO and grapeseed extract/pycnogenol combo.

We've done a lot of the other common DAN treatements as well, such as CaEDTA chelation and HBOT.
$5 off iherb.com. Use:REW815/$5 off pureformulas.com Use:RJNXCX

FuzzyOne
Posts: 778
Joined: Sat Jan 03, 2009 1:00 pm

Postby FuzzyOne » Sun Apr 05, 2009 4:55 pm

dabaxter wrote:Top gainers in order:
2. Carnosine-GABA combo. (Biggest Wow)


i'm curious about this - can you tell me why you started this combo? what dosage do you use (and you child's weight)? we're interested in trying carnosine and i am wondering why you used the two together? what gains did you see?

autismgal
Posts: 574
Joined: Wed Nov 14, 2007 6:13 pm

Postby autismgal » Sun Apr 05, 2009 9:18 pm

Top 4, in order:

1.High intensity ABA program, followed by inclusion in school
2. Mitochondrial disorder vitamins and supplements
3. GFCF diet
4. Melatonin for sleep

Here is a list of things we tried that were not my favorites: nonprescription chelators, occupational therapy, Inositol, GABA, auditory integration therapy, SCD, assorted creams.

Rockhopper
Posts: 517
Joined: Thu Feb 05, 2009 8:03 pm

Postby Rockhopper » Sun Apr 05, 2009 11:32 pm

We have soooo many more things to learn about. Just started probiotics and my youngest appears to be just about rid of her soupy, diarrhea poops.
Last edited by Rockhopper on Sat May 14, 2016 10:06 am, edited 1 time in total.

chloesmom
Posts: 457
Joined: Wed Aug 22, 2007 5:32 pm

Postby chloesmom » Sun Apr 05, 2009 11:38 pm

Our top six interventions have been:

1) enhansa curcumin
2) gf/cf diet
3) chelation
4)OLE/ virastop
5) mHBOT
6)ABA therapy

not necessarily in this order

Wendy
mom of Chloe 3 yrs. ASD

Perfect7
Posts: 172
Joined: Wed Feb 04, 2009 8:23 pm

Postby Perfect7 » Mon Apr 06, 2009 1:07 am

I didn't add what didn't work for us. Our biggest "Oops" was oral NAC. We tried it twice and both times (within a couple days) we had major regression. Then I read the oral form can cause yeast flare ups. :oops:

laurarimes
Posts: 6
Joined: Wed Aug 08, 2007 1:41 pm

Postby laurarimes » Mon Apr 06, 2009 11:27 am

Our tops:

1) Chelation. (started with AC protocol -> suppositories -> now IV's
2) Anti-fungals, Probiotics.
3) Valtrex.
4) mHBOT (just started, but seeing some gains already)
5) Chinese TCM tea. (Seems to be a really effective anti-fungal for us. I only give it when the yeast is kicking up)

What hasn't worked:

1) GFCF (though I should try Feingold to help with the yeast business)
2) mB12 (tried for 8 months, tried Hydroxy too)
3) NAET.
4) Enhansa. (I give it still, but can't say I see anything)

I'm always looking for "The Big Gun"...I'm hoping mHBOT will do it...

I wish I could find a correlation between things...seems like if chelation really works for somebody, then it seems like HBOT will too?

lookingforanswers
Posts: 2571
Joined: Wed Mar 29, 2006 5:55 pm

Postby lookingforanswers » Mon Apr 06, 2009 12:18 pm

Great thread: it shows how different our kids can be!

Here are my favorites:
1) GFCF diet, and avoiding food dyes and preservatives
2) One-on-one, structured intervention using a mix of ABA, PECS and RDI that I did myself, sometimes after learning about it on this board! (Thanks Littlebopeep if you're still around).
3) Enzymes
4) Vitamins, minerals, carnitine, coQ10, and probiotics
5) Speech therapy by someone who knows autism

What didn't work for my guy was:
1) TEACCH program
2) The "natural chelators"
3) Natural supplements for his behavior
4) Prescription medication for his behavior

BlearyEyedAlchemist
Posts: 788
Joined: Mon Sep 22, 2008 8:54 pm

Postby BlearyEyedAlchemist » Mon Apr 06, 2009 1:55 pm

1.GSH
2.CST
3.Oxytocin
4.Nystatin
5.LDN
6.Chelation
7.ABA
8.OT
9.Speech Therapy
10.Melatonin

Dani
Posts: 2297
Joined: Tue Mar 04, 2008 5:55 am

Postby Dani » Mon Apr 06, 2009 3:23 pm

BlearyEyedAlchemist wrote:1.GSH
2.CST
3.Oxytocin
4.Nystatin
5.LDN
6.Chelation
7.ABA
8.OT
9.Speech Therapy
10.Melatonin


What is CST?
I didn't know how strong I could be until I had to be.

BlearyEyedAlchemist
Posts: 788
Joined: Mon Sep 22, 2008 8:54 pm

Postby BlearyEyedAlchemist » Mon Apr 06, 2009 3:51 pm

Sorry. Cranio-Sacral Therapy.

Dani
Posts: 2297
Joined: Tue Mar 04, 2008 5:55 am

Postby Dani » Mon Apr 06, 2009 4:07 pm

Thanks! Our DAN recommended that to us but I didn't pursue it because I thought my daughter wouldn't sit still for it. Do you have problems keeping your son still for the CST?
I didn't know how strong I could be until I had to be.

dabaxter
Posts: 4052
Joined: Wed Nov 14, 2007 12:50 pm

Postby dabaxter » Mon Apr 06, 2009 5:38 pm

FuzzyOne wrote:
dabaxter wrote:Top gainers in order:
2. Carnosine-GABA combo. (Biggest Wow)


i'm curious about this - can you tell me why you started this combo? what dosage do you use (and you child's weight)? we're interested in trying carnosine and i am wondering why you used the two together? what gains did you see?


My child weighs about 40lbs. We give him 400mg of Vitacost Carnosine twice per day, as per the Dr. Chez study. We also made sure he was getting zinc and Vit E. We saw some quick speech and language gains. Adding in Thorne PharmaGaba slowly also caused further improvement.
$5 off iherb.com. Use:REW815/$5 off pureformulas.com Use:RJNXCX

JeniB
Posts: 5021
Joined: Thu Sep 04, 2008 10:10 pm

Postby JeniB » Mon Apr 06, 2009 5:39 pm

What didn't work? A prebiotic called Inulin. Yikes, turned the clock back months or more.


I hear you on this one! I actually strain out the inulin in the culturelle and pick out the yellow bits. This was a big problem in most of the probiotics we were using. All fillers were causing problems.

1. SCD
2. Prescription anti-fungals (naturals were hard on my son)
3. Culturelle/D-lactate free probiotics
3. antibiotics (yes-somehow by accident it got rid of some bad bacteria and eye stims finally went away)
4. Vitamin D and B-12/folinic acid/Thiamine and other B's
5. Not giving all supplements everyday all the time. Taking out magnesium stearate.
6. Pectasol Chelation Complex (we got much more language after just a few capsules of this)
7. Floortime play and applying "the Secret" mentality to recovery (yes, I'm a bit quacky...but this has been huge in his/my getting better). Thinking positive, no more talking about him in front of him, never crying in front of him.

more than 5 of course!
Jen

aisha
Posts: 1345
Joined: Wed Nov 16, 2005 3:45 pm

Postby aisha » Mon Apr 06, 2009 6:17 pm

question for those using melatonin. how much do you give ie 3mg or what when do you give it ,at bed time, how long does your child sleep with it . anymore info is appreciated.

autismgal
Posts: 574
Joined: Wed Nov 14, 2007 6:13 pm

Postby autismgal » Mon Apr 06, 2009 7:06 pm

aisha wrote:question for those using melatonin. how much do you give ie 3mg or what when do you give it ,at bed time, how long does your child sleep with it . anymore info is appreciated.


Hi Aisha, When my daughter was younger, we gave 1 mg at bedtime. I can't remember her weight; she was in preschool and the first few years of elementary school. This helped her sleep through the night. We don't use it now. Now she sleeps well (because she's in puberty :lol: ).

dabaxter
Posts: 4052
Joined: Wed Nov 14, 2007 12:50 pm

Postby dabaxter » Mon Apr 06, 2009 8:06 pm

BlearyEyedAlchemist wrote:3.Oxytocin


BEA,
What made you decide to try the Oxytocin? What behavior or why was it indicated?

What did you see from it?
$5 off iherb.com. Use:REW815/$5 off pureformulas.com Use:RJNXCX


Return to “Diet and Biomedical Treatments for Autism”