What Are Your Top Six Interventions - Biomed or Otherwise

Discuss autism diets and biomedical treatments of autism.

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momtoMatthew
Posts: 813
Joined: Sun Oct 23, 2005 5:47 pm

Re: What Are Your Top Six Interventions - Biomed or Otherwise

Postby momtoMatthew » Sun Jun 19, 2011 10:04 pm

1) Adult Stem Cells (http://www.cellmedicine.com/)
2) Flexi-Lite hyperbaric chamber (http://www.pthyperbarics.com/)
3) Fast ForWord (http://www.scilearn.com/)
Last edited by momtoMatthew on Mon Oct 10, 2011 9:37 am, edited 4 times in total.

asdnotes
Posts: 20
Joined: Tue Nov 24, 2009 10:25 am

Re: What Are Your Top Six Interventions - Biomed or Otherwise

Postby asdnotes » Wed Jun 29, 2011 11:40 pm

Hey all,

For us, it's been:
1. ABA. This has been absolutely huge.
2. Specific Carbohydrate Diet (totally grain free, this required a complete change in lifestyle)
3. Saccharomyces Boullardi (we saw an initial boost in language, but found out from another Dan Physician that it should only be used in short bursts - we had been using it for a full year. He's been off for a while now, so we'll likely start a new burst soon)
4. Therapy dog - He just turned a year old in May and he's been living with us since December, all while getting his training. Just the companionship has led to more language already.
5. Listening therapy - Something recommended by his OT. Saw some initial gains early on (at least I think we did…it's so hard to tell).
6. Speech/OT
Dad of 4yo/PDD-NOS: http://www.patientslikeme.com/patients/view/79287

sms
Posts: 180
Joined: Sun Dec 14, 2008 10:45 pm

Re: What Are Your Top Six Interventions - Biomed or Otherwise

Postby sms » Fri Jul 15, 2011 7:40 pm

1.antifungals/ bacteria meds
2. ABA
3. HOBOT
4. Diet

cmarnett
Posts: 1
Joined: Sun Aug 07, 2011 1:45 am

Re: What Are Your Top Six Interventions - Biomed or Otherwise

Postby cmarnett » Sun Aug 07, 2011 1:50 am

1. ABA 25 hours per week
2. IV chelation (weekly Cal Edta, DMPS, glutathione--2 years)
3. gfcf diet and digestive enzymes
4. glutathione cream
5. Listening therapy (Tomatis and home program with OT)
6. HBOT (mHBOT 250 hours)

maura101
Posts: 78
Joined: Sun May 22, 2011 12:07 pm

Re: What Are Your Top Six Interventions - Biomed or Otherwise

Postby maura101 » Fri Aug 12, 2011 7:43 pm

GF/CF diet, plus no dyes or preserv.
CALM brand magnesium citrate
Prism Glasses
Communication therapy
Cod Liver Oil
Enemas

Samantha
Posts: 1
Joined: Sat Sep 10, 2011 12:33 am

Re: What Are Your Top Six Interventions - Biomed or Otherwise

Postby Samantha » Sat Sep 10, 2011 12:52 am

New to this website, 3 1/2 yr old son hf asd regressive,diagnosed July 2010. He was classic autism at diagnosis. Today he is a blended preschooler :) Biomed and natural homeopathy doesn't seem to be the hot topic on other web boards. I see it as hidden magic. Looking for others like me. So here I am :)

DHA cod liver oil
Culturelle for kids
Udos choice toddler probiotic formula
Natures gate probiotic blend
All organic diet, with the occasional slip, nobody's perfect
L. Plantarum

Probiotics strains chosen for specific symptoms. Cod oil holds my gold medal of achievement. Culturelle is a close second.

Pearl1981
Posts: 638
Joined: Sun Jul 17, 2011 7:48 pm

Re: What Are Your Top Six Interventions - Biomed or Otherwise

Postby Pearl1981 » Thu Sep 22, 2011 9:16 am

daughter 3 yrs old verbal sometimes, developing well albeit with stranger anxiety and sensory issues but regressed in all areas (walking, talking,) after vaccines.

Main helps are

1.milk free diet (almost immediate difference within 1 week)
2.chelation AC protocol (pretty wow)
3. living with extended family and their children (lots of extra love, play, patience and extra attention other than mum and dad- made her more flexible taught her to play more)
4.low sugar and no junk food
5.Sleep well
6.Bone broths (less virus illness etc)
Daughter 5y.o lost diagnosis - 100 rounds cutler. Aspergers/ autism @2yrs

jennylynne
Posts: 1240
Joined: Thu Apr 14, 2011 12:01 am

Re: What Are Your Top Six Interventions - Biomed or Otherwise

Postby jennylynne » Mon Oct 03, 2011 8:34 pm

So far.... Only been in a yr

1. Oxytocin - she is looking at me and more responsive
2. Candex
3. Digestive enzymes at every meal.
4. Klaire probiotics and sacc b.
5. Waiting to see if phosocholine and dmae help...
6. Natural antibiotics, homeopathy and energetic healing

Nothing else worked well....
Tried valtrex , antifungals, multivitamins, zinc, b12 shots, Ldn, enhansa, carnitine , iodine, glutathione, choline and inositol combined, taurine, mitocell from kirkman, and more.
Trying phosphyditalcholine plus libostabil soon.....

Aba helps too and speech therapy.... But she is still nonverbal

Mindy
Posts: 40
Joined: Mon Jul 18, 2011 5:14 pm

Re: What Are Your Top Six Interventions - Biomed or Otherwise

Postby Mindy » Mon Oct 31, 2011 3:14 pm

I need to explain before I post my list, since I am not "there" yet and am new to the concept of Biomedical interventions. I have a nine-year-old severely underdeveloped nonverbal son who bangs his head, and until about six months ago hadn't tried anything except for the traditional interventions that were provided by the state, such as ABA, Physical Therapy, Speech Therapy, and along with an autistic public school classroom. His self-injurious behavior became so problematic that I was close to the end of my rope, when I became aware of a neuroplasticity program that has been absolutely life-changing. In addition to the major social and neurological changes that it facilitated, the program introduced me to the concepts of diet and other issues that could be in play, such as yeast overgrowth, so I'm perusing this board for more help in that arena. Here is my list:

1. Physical Therapy. Provided by a very special person, very sensory-based. He has very low tone and wasn't walking until age 3. Sensory is huge for him.)

2. The Carly Fleischman video This showed me that although underdeveloped and nonverbal, like Carly, my son was probably understanding everything I was saying, and Carly was able to tell us why she was banging her head.) http://www.youtube.com/watch?v=34xoYwLNpvw

3. Brain Highways. See [url]brainhighways.com[/url], as well as a couple of threads I've posted on here about it. He is a different kid than he was when he started. He looks at us, laughs, sits and listens to us read to him, sits quietly in church, takes long walks in the neighborhood, goes up and down the slide by himself at the park, is learning to swim, and has initiated some sign language. He attends Primary (we are Mormon (LDS) and this is a two-hour kids' Sunday program) with NT kids and neither my husband nor I have to be in the room with him. I have journalled a lot about it since we started; please pm me if you want to know more, or look at the Brain Highways facebook page where parents have posted our successes.) We are nowhere near being done with the exercises--I see tons of progress in our future. We saw changes within days. You attend two eight-week courses and then continue the exercises at home. They have a great online program if you don't live in San Diego or Denver.

4. The Brain That Changes Itself by Norman Doidge, MD. Makes you really believe that the brain can change.

5. Is This Your Child? By Doris Rapp, MD. I'm just starting to look at food sensitivities and this book is very detailed and helpful.

6. CST (Craniosacral Therapy). I am using a very highly recommended practitioner and my son enjoys his treatments. I can't "see" what is happening inside his body but I believe she's doing something, based on reports of adults I trust who can tell me how it makes them feel.

7. Diet. I have him on an additive-free, dye-free, organic diet, which is also free of dairy, wheat, soy, sweet fruits, and the top eight allergic foods. He immediately started sleeping better after I took dyes and refined sugar away. We are also suspecting some allergies that we hope will make a difference in how he feels and behaves, and we are using blood tests (from a traditional allergy doctor) as well as muscle testing (applied kinesthesiology) to confirm foods to avoid.

Things I have learned:

Our neurologist is not the person to prescribe behavior meds. (My son is on Keppra for seizures which is blamed for mood swings.) He prescribed Risperdal which helped a little but then he prescribed vitamin B6, telling me that there are "no side effects" but it seemed to make him worse. Thanks to this board (williams_dad) I found out that B6 alone can be problematic.

Update: April 21, 2012--We have been seeing a homeopath for several months (Jeanette Fransen) who has put us on several supplements and homeopathic remedies and we are seeing steady progress.
Last edited by Mindy on Sat Apr 21, 2012 4:32 pm, edited 1 time in total.

dabaxter
Posts: 4052
Joined: Wed Nov 14, 2007 12:50 pm

Re: Re:

Postby dabaxter » Sat Nov 12, 2011 9:05 am

dabaxter wrote:
dabaxter wrote:Top gainers in order:
1. GF/CF/EF diet.
2. Carnosine-GABA combo. (Biggest Wow)
3. ABA
4. Genetic testing/switching from Methyl-B12 shots to Hydroxyl B-12 shots. (Noticeable change in direction for the better)
5. Diflucan back to back to back.
6. CLO and grapeseed extract/pycnogenol combo.

We've done a lot of the other common DAN treatements as well, such as CaEDTA chelation and HBOT.


We've added oral LDN since and it has been a "wow" for us. It would have to be number 3 or tied with number 2 on our list. Everyone should try it, IMO.



I think this list needs updating for us.
Chelation with DMSA(and maybe ALA).
Cytoflora
Classical Homeopathy
These are 3 of the best things we've tried.

This story is not over. We're about to try an "out of the box" chelation protocol. I expect big things.
$5 off iherb.com. Use:REW815/$5 off pureformulas.com Use:RJNXCX

TahaErum
Posts: 1
Joined: Thu Dec 08, 2011 6:26 am

Re: What Are Your Top Six Interventions - Biomed or Otherwise

Postby TahaErum » Thu Dec 08, 2011 6:44 am

hi guys iam new to this group so still browsing. can some one suggest if b12 nasal sprays are effective and if yes where can i get them from (we live in dubai and have been ordering our suppliments from kirkman)

Dani
Posts: 2297
Joined: Tue Mar 04, 2008 5:55 am

Re: What Are Your Top Six Interventions - Biomed or Otherwise

Postby Dani » Fri Dec 09, 2011 11:20 pm

TahaErum wrote:hi guys iam new to this group so still browsing. can some one suggest if b12 nasal sprays are effective and if yes where can i get them from (we live in dubai and have been ordering our suppliments from kirkman)


I haven't used the nasal sprays but our doctor recommends them for children to whom you can't give methyl b12 injections (either it's not available in that country or the parent/child doesn't want to do the injections).

I think nasal spray b12 is better than oral b12 in terms of absorption.
I didn't know how strong I could be until I had to be.

Josie
Posts: 393
Joined: Mon Jun 11, 2012 1:35 am

Re: What Are Your Top Six Interventions - Biomed or Otherwis

Postby Josie » Fri Jun 15, 2012 6:55 pm

1. A grain free, sugar free, dairy free diet
2. Digestive enzymes & probiotics
3. Vitamins & Supplements (B vitamins, Mb12, Vit D, magnesium, zinc, Vitamin C, pumpkin seed oil, CoQ10, and calcium, thiamin), and PhosChol (PPC).
4. Pure Synergy Barley Grass juice powder
5. Apple cider vinegar, fennel & peppermint tea, with meals
6. Curcumin capsules

I have noticed good improvements since I started adding 1 tablespoon Zeolite Pure from Zeo Health to his bath water. I let him soak in it for about 20 mins. once or twice a week. It improves his mood greatly. Also this may not be considered biomed but I removed all the cordless phones in the house and replaced the wireless router with a switch which is similar to a router and added an Earthcalm Home EMF protection system to the house. Since doing this I have noticed improvements in behavior and sleep.
Last edited by Josie on Wed Jan 14, 2015 2:11 am, edited 43 times in total.

Tressie
Posts: 34
Joined: Mon Jun 04, 2012 1:36 am

Re: What Are Your Top Six Interventions - Biomed or Otherwis

Postby Tressie » Fri Jun 29, 2012 10:19 pm

1. AC Chelation
2. Antifungals
3. ACE
4. Low Sulfur Diet
5. Naturethroid
6. zinc


Website link removed by moderator

LittleBirdsLoved
Posts: 42
Joined: Tue Apr 03, 2012 3:08 am

Re: What Are Your Top Six Interventions - Biomed or Otherwis

Postby LittleBirdsLoved » Mon Jul 02, 2012 4:21 pm

MTS
Last edited by LittleBirdsLoved on Mon Feb 04, 2013 11:49 am, edited 1 time in total.

jejst
Posts: 29
Joined: Fri Apr 27, 2012 10:51 pm

Re: What Are Your Top Six Interventions - Biomed or Otherwis

Postby jejst » Sat Jul 14, 2012 5:47 pm

Since November 2011:

What work for my son 5 years old:
1. GFCFSF diet, corn free & diet for his food allergy.
2. Omega 3-dha more than 200 mg a day & Vitamin D
3. ABA therapy 4 hours a week.
4. Trampoline & Body and head massage 2 times a week.
5. Salt Epsom Bath-once a week.
6. Vitamin B complex everyday.
Last edited by jejst on Sun Nov 11, 2012 4:24 am, edited 2 times in total.
ASD son 5 years old

pingumamma
Posts: 113
Joined: Wed May 23, 2012 12:42 pm

Re: What Are Your Top Six Interventions - Biomed or Otherwis

Postby pingumamma » Fri Sep 07, 2012 2:19 pm

We started biomed July 2011. My son is now 5.
In order of best first:
1) Casein Free - massive sleep improvement and ezcema almost disappeared in a week
2) Cytoflora - more with it and improved eye contact (early days but a big wow)
3) Nordic Natruals strawberry CLO - skin improved /less irritable / looks less inflamed generally
4) Vitamin d3 drops - immune system appears stronger
5) Occupational Therapy - particularly trampoline and gym ball work for calming
6) Kirkman N-Acetyl Cysteine tablets (100mg) - less irritable and more focused - we struggle to get him to take this but when we do we see improvements.

We are still very much work in progress but are making good gains from where we started.

mbzoltan
Posts: 261
Joined: Sat Feb 03, 2007 8:11 pm

Re: What Are Your Top Six Interventions - Biomed or Otherwis

Postby mbzoltan » Sun Sep 30, 2012 9:43 am

1. Getting him OUT of Early Intervention. They viewed him as a checklist and not as a complex human being.
2. Mb12 shots.
3. Genetic testing through Yasko and following Yasko protocol.
4. Putting him in a small, six-kid home preschool with a teacher who has language disorder experience.
5. Word chart when we realized he could read -- he communicates very well with it, though not so much with apps.
6. ignoring all the "experts" who use non-evidence-based approaches to help him.

kulkulkan
Posts: 2075
Joined: Tue Mar 13, 2012 1:37 pm

Re: What Are Your Top Six Interventions - Biomed or Otherwis

Postby kulkulkan » Thu Oct 04, 2012 11:15 pm

We have been at it for about two years now (in order of intervention tried and found to be helpful):

1. Milk free diet - instant change (less spacey/spinning), tested positive for casein peptides later and high IgGs as well.

2. High dose CLO with vitamin D - combined with 1 gave us eye contact and responding to name

3. B-Vitamins - combined with 1 and 2 gave us spontaneous expressive speech

4. ABA / VB - continuous gradual improvements plus teaching speech at home

5. Methyl B12 shots and Methyl folate - wow big change in social, verbal and spontaneous interactions. MB12 works for us.

6. AC Chelation (oral DMSA/DMPS/ALA) - we are seeing positive things since we started (mostly cognitive - more aware and asking lots of questions). Have done four porphyrin tests to confirm heavy metal burdens and oxidative damage - lowered copro from 360 to 260 and precopro fluctuates.

7. sonic cholesterol - our son just switched on after starting this. He was in the 5% for his age for total cholesterol (very low).

Started with ATEC score of 84 and around 10 now (in two years). Our son is generally not typical gut kid at all though does have yeast which often flares (especially after starting AC chelation).
Last edited by kulkulkan on Tue Sep 09, 2014 12:40 am, edited 3 times in total.

mark24317
Posts: 1
Joined: Fri Nov 16, 2012 4:11 pm

Re: What Are Your Top Six Interventions - Biomed or Otherwis

Postby mark24317 » Fri Nov 16, 2012 4:23 pm

jejst wrote:Since November 2011:

What work for my son 5 years old:
1. GFCFSF diet, corn free & diet for his food allergy.
2. Omega 3-dha more than 200 mg a day & Vitamin D
3. ABA therapy 4 hours a week.
4. Trampoline & Body and head massage 2 times a week.
5. Salt Epsom Bath-once a week.
6. Vitamin B complex everyday.


From what I've read, #'s 1,2, and 3 are pretty effective. Has anyone tried coconut oil? It has an action similar to Omega 3.
Autism specialist with 20 years experience:


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