Lutimax Luteolin Supplement

Discuss autism diets and biomedical treatments of autism.

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JeniB
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Re: Lutimax Luteolin Supplement

Postby JeniB » Wed Jul 06, 2011 8:42 am

actually, sticky fiber like this does detox the body. It binds to bile from the liver taking out many environmental toxins like pesticides. It allows the liver to make new bile instead of recycling it. Rutin, apple pectin, citrus pectin and the fiber in beans and psyllium definitely aid in detoxification. Rutin, apple pectin and citrus pectin do chelate metals from the gut-not the organs and bloodstream (except supposedly modified citrus pectin). I've read this several times over the years. It isn't as good of a bond as in DMSA or ALA, but it is helpful if your child can tolerate it. The fiber won't redistribute metals either.
Jen
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alberta
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Re: Lutimax Luteolin Supplement

Postby alberta » Sat Jul 09, 2011 5:57 am

Does anyone have what's listed as ingredients on the Lutimax label? (We react to a lot of things in my house and I've been trying to find the ingredients but it doesn't seem to be located anywhere). (I've been burned a few times by supplements before where there's no ingredient label listed anywhere and I order it only to find out there's something in it that's reactive with my kids).
Alberta

Kastania
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Re: Lutimax Luteolin Supplement

Postby Kastania » Sat Jul 09, 2011 6:34 am

There is Luteolin from Chamomile and Rutin from Sephora - these are the only two ingredients listed.

SleepingUnderStars
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Re: Lutimax Luteolin Supplement

Postby SleepingUnderStars » Sat Jul 09, 2011 3:55 pm

Wanted to update. We have almost finished our first bottle!

Son has done great on this too, but I think this product is easier to use than Neuroprotek. I kept stopping NP because is was such a pain and mess to cut open the capsules since he doesn't swallow then yet. Same great results, calmness, better bowel function and seems to really be wanting to learn.

We are doing 1/2 teaspoon twice a day. Glad we tried this one, seems to be a keeper for now as I need our regimen to be as simple as possible!

alberta
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Re: Lutimax Luteolin Supplement

Postby alberta » Sun Jul 10, 2011 2:45 am

Thanks, Kastania!
Alberta

andysmom
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Re: Lutimax Luteolin Supplement

Postby andysmom » Thu Jul 21, 2011 2:55 pm

hi kastania

thank you for recommending lutimax, we started it a week ago with my son and it is definitely helping with inflammation here (significant reduction in headaches for one), slowly ramping up the dose as initially he seemed a bit weepy on it but thats passed now and doing great, much happier and obviously in less pain.

I wanted to ask you if you had started the surfectant????? (i searched on this one and couldn't figure out an example of one to use - do you know?) and the MSM in conjunction with the Lutimax - would be really interested to hear your thoughts - again thanks for getting us going on this one, its the first WOW we have had with biomed :D

Kastania
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Re: Lutimax Luteolin Supplement

Postby Kastania » Thu Jul 21, 2011 3:14 pm

Hi andysmom

I am so pleased for you that your son is doing well on Lutimax. It really is an amazing product for us - even though we are on a tiny dose still, my daughter is doing better every day. I haven't looked into the surfectant yet or the MSM unfortunately. What you could do is contact Tom Lahey, the chemist who developed Lutimax. He is a very nice man and he will be able to advise you.

I hope you continue to see lots more gains with Lutimax!

kastania

twinsohmy
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Re: Lutimax Luteolin Supplement

Postby twinsohmy » Wed Jul 27, 2011 3:03 pm

dabaxter wrote:It just goes to show you that each patient is different. However, I did go ahead and order some plain luteolin powder from the link you posted earlier. I may go back and try it again soon without the Rutin and see what happens.



DB, have you tried it yet?

dabaxter
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Re: Lutimax Luteolin Supplement

Postby dabaxter » Wed Jul 27, 2011 6:54 pm

dabaxter wrote:ok. We tried the LutiMax poweder at 1/4 tsp 3x/day. We did not see hyperactivity. Instead, what we saw was brain fog, increased weepiness, and my son seemed like he just felt really bad. Also, his small language gains that we say with CytoFlora seemed to evaporate while on LutiMax. We ended up dropping it within a day after his 4th dose. We may try again at some point, but it did not turn out like I expected at first.


We did try it, but it didn't work well for us. I ordered some of the plain luteolin powder from beyondacentury.com that Kastania had posted about. We haven't tried it yet. We have other trials going on, including a fecal transplant scheduled for tomorrow.
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twinsohmy
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Re: Lutimax Luteolin Supplement

Postby twinsohmy » Fri Aug 19, 2011 7:58 pm

Kastania & anyone else--any updates on this product? We are going to start it tomorrow at a tiny tiny amount and see how it goes.

andysmom
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Re: Lutimax Luteolin Supplement

Postby andysmom » Sun Aug 21, 2011 5:20 pm

hi twins

we have been using lutimax for just over 1 month now and are very happy with it - a significant reduction in headaches and tummyaches, the reduction in inflammation has led to a much calmer, happier, chilled boy in general and we're are really enjoying that here.

good luck with it, its a keeper for us.

twinsohmy
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Re: Lutimax Luteolin Supplement

Postby twinsohmy » Mon Sep 05, 2011 7:10 am

We started Lutimax a couple of weeks ago and I wanted to share our experience, we have learned a couple of valuable lessons so far. We used the regular pediatric powder at a tiny dose one time a day and one of the girls got very weepy. Lutimax was really responsive to our problem and advised us to dose 3-4 times per day and right away this took care of that issue. After a few days one of the girls got very hyper, then a few days later both girls become off the wall hyper, worse than I have ever seen them. Again, the people at Lutimax helped us right away, returned phone calls immediately and got us the product with L-Theanine added the next day.

We are now trialing one of the girls on the pediatric powder w/L-Theanine, started yesterday. I am very hesitant to say any intervention is working until we have been on it for awhile, but I couldn't help but get excited yesterday after Keira took her first dose. She said a word she has never attemped to even echo, spontaneously and in context, and also was practicing the "M" sound over and over, we thought she might be saying mama, just not in context.

Keeping our fingers crossed on this supplement!

alinakvacheva
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Re: Lutimax Luteolin Supplement

Postby alinakvacheva » Fri Sep 09, 2011 5:03 pm

I started my 7 year old on Lutimax about a week ago. We see really big gains in speech - he says words he never said before, also he puts words into short sentences -Yeay!!! But school reports behavioral issues, and today he had several pee accidents! We haven't had this happening for a year. I am worried - is it side effect? I would hate to stop it, since I see definite gains. I read that side effects might include hyperactivity, and that it means sulfate deficiency. I have been doing Epson Slot baths every evening, but side effects seems to persist. Please, share your experience, I am getting desperate here!

susiejay
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Re: Lutimax Luteolin Supplement

Postby susiejay » Fri Sep 09, 2011 8:52 pm

We started Lutimax here this week and so far I think this is a keeper. Ds has gotten good reports from Pre-K the past 2 days that he attempted imitation during circle time. This is the first time in the 8 months he's been there he has done that. I'm only giving 1/8 tsp twice per day right now. I may go up to 1/4 tsp twice per day next week. I started with the one with L-Theanine so I haven't noticed any hyperactivity.

Amy

Kastania
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Re: Lutimax Luteolin Supplement

Postby Kastania » Fri Sep 09, 2011 10:43 pm

alinakvacheva, we also had peeing accidents when we first started with Lutimax. It is very phenolic, so I always give it with Houston's No-Phenol Enzyme and the peeing accidents stopped. You may also want to contact the manufacturer and speak to him about how to reduce side-effects, he is very helpful. I am so happy to hear you are seeing improvements in speech.

alinakvacheva
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Re: Lutimax Luteolin Supplement

Postby alinakvacheva » Sun Sep 11, 2011 6:18 am

Thank you Amy and Kastania! I will start giving No Fenol with LutiMax. Kastania, have you tried just Luteolin without any additional components in it? I talked to Tom and he recommended to increase dosage to 1/4 tsp. Now I give less then that. I did bump it to twice per day without side effects increasing,but I am hesitant to sudden dosage increase. I will work the dosage up slowly. So far I see expressive language gains and it is a big deal with us! Does anybody know what change happens with LutiMax on kids test results? I would be curious to do tests now when we just starting LutiMax, and a couple months later, to see what exactly has changed. I think there are several types of Autism / underlying conditions, not just one. that would explain why different kids react so differently on the same supplement. From what I read about Luteolin effect on microglia activation, it should be working with kids with brain autoimmunity underlying conditions. What are your thoughts? Has anybody tried to do before and after tests?

Kastania
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Re: Lutimax Luteolin Supplement

Postby Kastania » Mon Sep 12, 2011 7:01 am

I haven't tried Luteolin on it's own. I think the only Luteolin available commercially without anything added is from Beyond A Century and it comes from peanuts, which puts me off. I know that Dr Theoharides, the developer of Neuroprotek, is coming out with a plain Luteolin towards Xmas, so will probably try that. I haven't tested my daughter after the use of Luteolin (we are all tested out to be honest), but what I think it does is: 1. decreases microglial activation, which is a huge issue for so many of our kids 2. it increases dopamine; the higher the dopamine, the better the speech 3. decreases inflammation generally.

Glad it's working for you.

alinakvacheva
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Re: Lutimax Luteolin Supplement

Postby alinakvacheva » Mon Sep 12, 2011 10:11 am

Kastania, I could get hold of No-Phenol over the weekend, but kept going with LutiMax, hoping to get No-Phenol first thing Monday morning. To my surprise, we had a great weekend, no accidents, no hyperactivity! I kept giving him daily Epson Salt bathes, though. I definitely see increased awareness, and most importantly language! Yeay! It is first time after GFCG diet we got really noticeable change in him with biomed. Like you said, Luteolin decreases microglia activation. Since this is working, it makes sense to look at other supplements that decrease inflammation and also immunomodulators. From all our biomed experiences I think that my son’s autism is rooted in immune dysfunction, maybe even autoimmunity. His immunological markers show hyperactive immune system, like it is constantly “on” fighting something, but never resolves it. Kastania, do you have any experience with immunomodulators and anti inflammatory supplements?

Kastania
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Re: Lutimax Luteolin Supplement

Postby Kastania » Tue Sep 13, 2011 1:56 am

alina, these are the right questions to be asking. If this is the first intervention that you have seen progress with since beginning gfcf, you can almost be pretty sure that neuroinflammation and immune modulation are what you should be looking at.

1. Epsom salt baths do help with Phenol issues. If you can give a small amount of No-Phenol with the Lutimax, I would do it.
2. Rx anti-inflammatories are: Spironolactone (we use this for brain inflammation), Actos, Ibuprofen (hard on the gut). Enhansa is a good anti-inflammatory and reduces microglial activity. Boswellia is also good, albeit a little hard on the stomach. Neuroprotek has good results with some. There are other naturals as well, but I've found turmeric and Boswellia to be good. Strong Olive Leaf Extract is also good for reducing TNFa and other inflammatory cytokines.
3. Low-Dose-Naltrexone - this has been huge for us. Some have had success with Transfer Factor.
4. Look at your child's oxidative stress levels - this points to faults in methylation, reduced glutathione and need for increased anti-oxidants. These all go together, it's important to see what your child's status is with these.
5. Do a search on this forum for 'Juan Rodriguez' - he has his own blog where he talks about how he recovered his son, using immunomodulators such as Immunovir, Low-Dose Naltrexone and IVIG.
6. Search this forum under 'inflammation', there is a lot of information.
7. Do you have a good DAN who knows about these issues? Have you done an Immune panel?
8. Is your child prone to seizures? If not and levels of oxidative stress are within range, some have done well on HBOT.
9. Prednisolone was helpful for us, to get initial levels of inflammation down. Some pulse this every week or two weeks.
10. In my opinion, one of the best anti-inflammatories for the brain is Ketotifen Fumarate. If your child is not prone to seizures, it can be life-changing. It is basically an anti-histamine which can help control leaky gut. Do a google search of Dr Kurt Woeller and Ketotifen. The mothers who use this, rave about it because it can do so much for our kids. It needs to be compounded in the U.S. and not many doctors know much about it. In Europe it has been around for years.
11. Singulair is a good lieukotriene inhibitor and we use this successfully at a small dose.

Go after inflammation, you will see more progress. Sorry my post is all over the place, but hope it's helpful.

alinakvacheva
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Re: Lutimax Luteolin Supplement

Postby alinakvacheva » Wed Sep 14, 2011 10:30 am

Dear Kastania,
Thank you so much for response. Our situation is that we have been with several DAN! docs from our area (Dallas, TX) for 4 years, and we have done pretty much all from the standard DAN! treatment protocol – 2 years of chelating, 2 years of HBOT, B-12, ton of supplements that they normally prescribe and such. I can’t say he hasn’t improved, he has overtime, but we never had biomedical intervention that would give us that Wow! response. We tested and re-tested him, his metabolic tests look pretty dissent. His immunological results are on the other hand are all over the place, but all recommendations coming from our DAN! docs are very contradictory and inconsistent – kind of like “try and see”. I don’t know much about immunology, but I do know that the treatment should be based specifically on condition and test results and have some clinical validity. I am willing to experiment with natural remedies, but the “try and see” approach with Rx immunomodulators are very scary thing for me to do. I did put him on Valtrex protocol a couple of months ago, because it made sense to me, but it is as far as my comfort level stretches. For example, I have been researching LDN for a long time, I even bought it, but I am still not sure about it. I read research papers that show it acts like an immunostimulator, and my kid immune system is over stimulated as it is with some immunoparameters are too high, and some are too low, it takes a specialist to find right treatments. I tried to go to pediatric immunologist in our area, he kept us in the waiting room for a couple of hours and then showed up and said he couldn’t treat us because I wrote in the intake papers that we are on ASD spectrum! Dr. El-Dahr from New Orleans is an immunologist that deal with ASD kids, I am currently waiting for appointment with her. I am hopeful, and I think we are finally on the right track. The point is, we don’t try to treat “Autism”, which is nothing but a meaningless label, we need to treat the actual medical issue that leads to “Autistic” symptoms. DAN! Docs are great, but why can’t we use experience of experts in the medical field that have expertise to treat the underling conditions? Why is that they don’t want to treat Autistic kids? I once waited in pediatricians office for a couple of hours with my kid with ear infection, and when he finally showed up, he refused to treat us! And mind you, the only way they can even know he is Autistic is from the intake papers that I write, he is high functioning and the only thing the outsider will notice is a lack of speech! Is not it a discrimination to refuse child a treatment because he has some chronicle illness???
Sorry for the long letter, I am actually very much appreciating and looking at the recommendations you sent to me, may be I just need to get brave and just do adopt “try and see” approach with Rx slowly and carefully, if there is no any other way :D


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