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I've come up with a biofilm protocol...what do you think?

Posted: Wed Jan 04, 2012 11:42 am
by JeniB
O.K. after 2 weeks on the xylitol nose spray, and xylitol in his vitamin mix, he's really improving even more. So, been thinking about all of what I've read and have come to a conclusion (about my guy anyway)

he has low hair calcium, but high blood calcium at times. I believe that KPU and biofilms are intertwinned. The arthritis/inflammation/mold issue all contributes, but the bacteria...I believe is at the root of it for my son. klebsiellia is a biofilm bacteria found commonly in hospitals. What two minerals antagonize zinc? copper and calcium. I believe these biofilms are made up of primarily, calcium, copper and iron. So, here you get zinc wasting and immune system problems. Trouble is, you add in lots of zinc and RELEASE the biofilms and excess calcium and copper, getting lots of stimming and bacteria ...which can then spread if you're not treating them. I've also read on treating h. pylori with a carnosine/zinc combo. Carnosine TAKES zinc into the ulcer to kill the pathogen.

Start with virastop. on empty stomach to BREAK through the fibrin in the vessels and intestines, 30 minutes after, give a mixture of xylitol and lactoferrin along with pectasol - this will grab all of the minerals in the biofilm. Virastop hasn't caused any stomach trouble with us at the right dose. And then soon after, give a zinc/carnosine supplement to get into the ulcerations. These sores/bacterial colonies like the article said, use many bacteria to form. But mainly they use copper, iron and calcium to REPEL zinc and HIDE fromt he immune system and ultimately makiing the body waste zinc. B6 also helps the body use calcium for itself and not the microbes. I feel that microbes are at the root of the oxalate issue too. Mold makes all of this so much worse because it will inhibit several things, vitamin K and thiamine (which makes stomach acid and forms the myelin sheath and BBB). So with the mold, these toxins get into the brain more readily. vitamin K is lost and can't help put minerals where they need to be. The clotting is a mess for these folks because calcium controls this action. This is also in MS. First symptoms of MS are what my son showed, I've always thought it was similar. The lesions, (thiamine deficiency) and the plaque on the optics in the eye, the double vision, not even know where you're feet are unless you are looking at them, lots of the same symptoms. MS can be triggered by vaccines, mainly, I feel, bacteria in the vaccines, using aluminum and eggwhites to grow (did you see that the wound surgeon used eggs and potates to grow the biofilms? and you wouldn't find them unless using these mediums? Eggwhites are used to make vaccines. So then you get these biofilm bacteria in the veins blocking blood supply and oxygen to many places. Plaque. Tooth Plaque is just as bad. Just in the last 20 years have we all started with "routine" plaque cleanings. You get bleeding in the gums and you are in trouble for these bacteria going into the bloodstream. They will travel to your joints, brain wherever they can get. Heart disease...biofilm plaque.

So get rid of the plaque, kill the bugs and use zinc to get in there and heal the wounds.

I think for the sensitive ones, just lactoferrin and xylitol is a great place to start. No need for scripts for antibiotics.

ALA also helps remove this plaque damage and rebuild the vessels and myelin. I think it's rebuilding the blood brain barrier and carrying out metals through the gut. You just HAVE to kill the bugs at the same time while doing ALA. But ALA is a part of the cure, the damage done. It will fix. This is why many AC's will heal when they can finally up their doseage. If you kill the bugs this way at the same time, it will work much better. This is why I've had to rely on biociden at this point. Now, xylitol is working just as good if not better.

Re: I've come up with a biofilm protocol...what do you think?

Posted: Wed Jan 04, 2012 11:55 am
by JeniB
take a look at the biotene mouthwash for biofilm

enzymes
lactoferrin
zinc
xylitol

nuff said!

also use the Squiggle xylitol 20% toothpaste to eliminate the tooth biofilm. This has been great for my son's teeth. At the same time, tackle the sinuses with Xclear. This is imporant. This will bring on more social interaction. If you have a chronic nasal infection...the olfactory bulb sends messages to the brain for social interaction. You will not recognize your OWN SPECIES if this area is damaged with biofilm bacteria-ever wonder why autistics love vaccum cleaners more than people? they relate much more to sound than scent, the zinc deficiency alone will alter taste and scent. Not to mention how close the sinuses are to the BBB and can allow bacteria INTO THE BRAIN. Fungus, molds and bacteria can cause mental symptoms in the sinuses if this area is damaged and has no BBB. The sinuses constantly drain into the throat and you swallow it. With a thiamine deficiency, you will have repeat intestinal infections with bacteria , parasites, viruses. The stomach acid isn't there to kill them before going into the small intestines. The mold doctor, Shoemaker, uses a biofilm/antibiotic/fungal nose spray. with EDTA to grab the minerals. Mold victims have chronic sinus issues, and bloody nose issues too. I wonder if Xclear could add lactoferrin safely? It already has GSE for fungus.

Important to follow up with probiotics.

Re: I've come up with a biofilm protocol...what do you think?

Posted: Wed Jan 04, 2012 11:57 am
by AnxiousDad
How much lactoferrin and Xylitol? This is a really good protocol that you have come up with. Can you please also discuss some dosage information. I came up with approximately 250mg or one capsule of Jarrow brand Lactoferrin.

Re: I've come up with a biofilm protocol...what do you think?

Posted: Wed Jan 04, 2012 12:07 pm
by JeniB
start slow with lactoferrin. It will release bacteria (and probably metals). I used 100 mg and my son was spacey for about 30 minutes. You can also add in at the same time some good way to treat parasites. Maybe some wormwood at first? We had a "microsporidia" come up with my son. Do many in your family have plaque issues on their teeth? I see this in autistic families alot. These plaques/biofilms are blocking blood supply and deposited. I think in my son anyway. For sure. They have tons of it in their veins and in their joints and spine, but none in their bones and being used for what they need it for. Also, look at lysine, proline and arginine. Lysine and proline are a big combo in the heart disease community. You need arginine to fight bacteria. lysine manages calcium and clears the vessels-proline rebuilds them and plugs in the "holes".

Re: I've come up with a biofilm protocol...what do you think?

Posted: Wed Jan 04, 2012 12:16 pm
by AnxiousDad
To be honest, I am looking into this because i feel parasites to be the root of all autism issues. The site that i posted a few days back talks about treating biofilms for protozoan parasites using the lactoferrin and Xylitol protocol.
100 mg sounds about right.

Re: I've come up with a biofilm protocol...what do you think?

Posted: Wed Jan 04, 2012 12:28 pm
by JeniB
I wouldn't doubt it AD. One thing I just thought of to include would be selenium, manganese and maybe moly. to help manage any possible copper release. I think these microbes have gotten smart and are using our minerals to block certain vitamins and minerals that help manage the immune system. Like vitamin D, zinc and using up calcium...so it also contributes to the oxalate issue because calcium isn't there to bind to it properly. I think it's dangerous to follow marshall protocol with ASD kids, because I think they all need vitamin D, but can't use it. I'm thinking this is more of a toxic nature. Like lead or arsenic, actually making it unavailable. So, I still think chelation is helping this process along. And I still think gross amounts of vitamin A aren't the answer, just making it more available is. vitamin A needs zinc to be carried out and used from the liver. If you have a biofilm problem that has copper in it, then you can't use the zinc you're giving or the vitamin A. CLO form of vitamin A isn't toxic supposedly.

the next layer I've seen get better lately with my son is the pretend play with batman. Actually asking his friends at school about their favorite characters. Shooting like the other boys in his class. He is relating to what is appropriate with his age. This has all happened since adding in virastop and now the xylitol. Just one day of the lactoferrin. But I think it will help. Folks need to foreget about worring about the whey in it. You're getting to the root of the problem.

Re: I've come up with a biofilm protocol...what do you think?

Posted: Wed Jan 04, 2012 12:38 pm
by AnxiousDad
JeniB!
Which version of the XClear should I use? There is a XLear for kids? Or should i just use the adult version?

Re: I've come up with a biofilm protocol...what do you think?

Posted: Wed Jan 04, 2012 1:17 pm
by AnxiousDad
JeniB wrote:I think these microbes have gotten smart and are using our minerals to block certain vitamins and minerals that help manage the immune system

I concurr, very recently i came upon a scientific article that states that parasites actually reduce an enzyme called CHYMOTRIPSIN. Chymotripsin is the main ingredient of the autism drug called CM-AT that was on clinical trial from the company called CUREMARK.

Re: I've come up with a biofilm protocol...what do you think?

Posted: Wed Jan 04, 2012 1:23 pm
by dabaxter
JeniB wrote:O.K. after 2 weeks on the xylitol nose spray, and xylitol in his vitamin mix, he's really improving even more.


JB,
What improvements have you seen from this?

BTW, there is also xylitol nasal wash. I used it when I had a head cold last month and it cleared me right out after a couple of days.

Re: I've come up with a biofilm protocol...what do you think?

Posted: Wed Jan 04, 2012 2:39 pm
by JeniB
He is more verbal and mature. especially in subject matter interests. We are seeing for the first time same age play with superheroes. He told me yesterday that he wanted to wear his green shirt to be more like the green lantern. He asked me to pretend to be batgirl...and we went around killing villans. Just an overall improvement. Still have some interest in the doors at the stores, but I think it has more to do with the toxins and not being able to process them out fast enough. This is where I think pectasol and giving antagonists to the mineral release with die-off will help along with just having more chelation done. It only lasts for brief moments. with cognitive gains in-between.

Re: I've come up with a biofilm protocol...what do you think?

Posted: Wed Jan 04, 2012 2:42 pm
by JeniB
I use the Xclear for adults, only because it's design prevents contamination from repeated use. He has finally gotten used to it, I had a very hard time getting him to let me do it. I just had to finally force it or get punished...which I hate doing, but we get sinus infections a lot and I know he needs it. Now, he lets me give it to him every night, which is the best time to do it, so that it will drain back into the nose and through the throat. This stuff will knock out a sinus infection quicker than any antibiotic.

Re: I've come up with a biofilm protocol...what do you think?

Posted: Wed Jan 04, 2012 4:02 pm
by Pearl1981
Jen this is so fantastic as usual you contribute so much fantastic stuff!

My daughter has a chronic blocked nose, snores terribly at night, and if its not streaming like a tap its always stuffy.

I saw a great improvement in her mouth ulcer problem with the xlytol.

When is the best time to treat bio films? Is it too soon for us?

Also I wanted to ask about when you mentioned so many AC's heal when they up their dosage. Can you explain this to me please? How much and what dosage? We are on 40% per lb, and

this week she has seen a slight improvement on all round social appropriateness and maturity ...more or less hit a stall though and some small stims are back very occasionally which I feel was brought on by the core mineral...but over all much better...

Thank you !

Re: I've come up with a biofilm protocol...what do you think?

Posted: Thu Jan 05, 2012 1:10 am
by jennylynne
can I just use Lactoferrin that is in Raw milk or Whey Protein isolate? I am debating buying some undenatured protein online( not for this but for protein in general.

Is that why she is doing better on Raw milk? ( because the lactoferrin is still not killed by heat?) I put some xylitol in her night milk.... How much Xylitol is the theraputic dose without causing loose stool?

Her yeast seemed better....until our 3 chelation rounds this month. I hit the antifungals way too hard and either have die off, oxalate dump, or I am severely confused. We are doing 1 tab GSE a day, 3 doses Nystatin( trying to end that in 5 days...hoping I don't scream for it next round), Candex and VSL3 at night, and Capryl(1/2 a capsule in guacamole). I think I am doing too much to her at once ! :( The Nystatin has about 1/4 bottle left... She is not going to bed at night, and was night waking. I have been giving her about 10 mg 5HTP with no result. Thinking about upping it to 25mg.

Still no on Virastop....so I will try the Lactoferrin and Xylitol. Can you use the xylitol gum for this? or Xylitol candy? I am wondering if I can bribe her with xylitol candy since she is craving sweets ( which is why I can't tell if she is yeasty, bacterial...or in die off....all her symptoms are same for both). She is really spacey as well.

We can't keep chelating until we get her dysbiosis handled...

I have seen a few gains though. Yesterday and last night she said " thank you". She hasn't said that in a YEAR and a half!! Today she was totally spacey and is awake in her room banging at the door and was laughing :(

Re: I've come up with a biofilm protocol...what do you think?

Posted: Thu Jan 05, 2012 7:37 am
by jadensmom
What brand xylitol are you using to put in his vitamins and how much? I looked through the posts but could only find the toothpaste and nasal spray mentioned. Thank you.

Re: I've come up with a biofilm protocol...what do you think?

Posted: Thu Jan 05, 2012 12:29 pm
by alberta
FREEEEEAKING GENIUS, JB!!!!

I've been wondering why Maia's responding to such high doses of carnosine. I mean, she's a bottomless pit responder to carnosine.

Do you have a link to the article about the carnosine and how it gets into the ulcers to destroy microbes? I'd love to read about it.

Re: I've come up with a biofilm protocol...what do you think?

Posted: Thu Jan 05, 2012 3:04 pm
by JeniB
The brand I'm using is Nature's Sweet life, it's a xylitol sweetener I found in the HFS. I use one of those little white scoops that came with my probiotics (the bigger one...not sure of the size, I just mix it in with the virastop)

http://www.nature.com/nrgastro/journal/ ... p0778.html

http://www.purematters.com/herbs-supple ... -carnosine

http://books.google.com/books?id=-juSKj ... ge&f=false

http://www.metagenics.com/products/a-z- ... Zinlori-75

http://www.thehealthierlife.co.uk/natur ... 00224.html

http://www.seacoast.com/pepzingi/jarrow ... ules/p5140

Re: I've come up with a biofilm protocol...what do you think?

Posted: Thu Jan 05, 2012 3:22 pm
by jennylynne
Jen...we have only ever done 2 CDSA samples. The rest were lame hospital ones that were useless to us because they didn't look for bacteria and yeast in the gut like the CDSAs.

Anyways.... Does it make sense that she could have gotten klebsiella and enterobacter from the hospital? In her CDSA before klebsiella was present at low amts with Staph Aurelious( which I think is linked to her ezcema...not worrying about MSRA right now). Anyways, the klebsiella, enterobacter, and staph are STILL present a year later. I want to do another stool sample in a few months to see what is going on. Last time, she had an active infection of Klebsiella...so I really do think it created a Biofilm. Same with her Candida parapsilosis. I think she somehow got that from ME, or from a hospital. I had a catheter in during childbirth. Could I have gotten that and passed it straight to her? No other catheters in my life and no hospital stays for me. No oxygen except at the dentist ONCE 10 years ago( nitrious..not oxygen, but still a breathing mask). I think I have some dysbiosis now and am taking GSE. I have severe chronic fatigue. I can't wake up in the mornings....and then I have insomnia at night. I have some classic candida symtpoms, and now I wonder if Marisa has them too ( 14 mo old). I don't have a doc that will sign a GPL slip for me for her though, and our DAN isn't her doctor anymore...so I don't know if he will sign a slip.

I have been putting 1/4 tsp xylitol into her milk. Going to look at lactoferrin supps. I was thinking about the nattokinaise protocol. I do not want to use Flagyl or vancomycin( whichever is the one they use) for the protocol. Plus the biofilm supp from I think Kirkman has ETDA which even though it is not absorbed by the gut much I do not care to use since we are chelating and her glutathione is low. I don't know if her sigIGA is still low ....we didn't put enough stool in the tube that did the digestive analysis so they just did the microbial stuff :( Her good bacteria was all 3/4 in september though...so one would "THINK" that her bacteria should be more in balance.

Re: I've come up with a biofilm protocol...what do you think?

Posted: Thu Jan 05, 2012 3:34 pm
by JeniB

Re: I've come up with a biofilm protocol...what do you think?

Posted: Thu Jan 05, 2012 5:11 pm
by AnxiousDad
I know its hard to believe but everyday i am becoming more and more convinced that autism is caused by parasites. Particularly organisms that can build up in colonies and form biofilms around them. So that would mean that for susceptible individuals with some genetic deficiencies, autism could be contagious.
Has anyone heard of Rob Nijssen’s Protocol of netherlands. This is the guy who cured not just recovered his son's severe autism by treating parasites. He was convinced as well that his child's autism was caused by parasites that had taken a hold of the body and were throwing everything off including oxalate issues, inflammation, viruses, fungi, heavy metals and endocrine problems, also throwing off vitamins and minerals balances. He uses a certain honey powder. I wonder whether this honey powder is a high source of xylitol that actually works on the biofilm.

http://www.threewells.nl/index.en.php/I ... rotocol_EN

alberta wrote:FREEEEEAKING GENIUS, JB!!!!
I concurr. JeniB is the best researcher in this forum.

Re: I've come up with a biofilm protocol...what do you think?

Posted: Thu Jan 05, 2012 6:30 pm
by JeniB
I think it is too AD. Contagious. We have a LOT of sick people around us, grandma's and grandpas, my hubby is getting stomach issues now too, and I feel it happening to me as well, heck my dog also got very ill. I think we are just exposed more and are exposing our babies to so much more than in years past. We think nothing of putting an 8 week old baby into a daycare center with exposure to many other babies. I work in a preschool and believe me, it's HARD to keep things clean and changing diapers...well you know that stuff is getting everywhere. Just have to have one kid scratching his itchy bottom, playing with toys and you've got problems. We take them out to the store, in airplanes, out to eat...you name it. I do think their immune systems are impaired. It's not happening to every kid exposed. I think medications like tylenol and ibuprofen are doing their damage as well. If the mucosal lining is working, these things do not infect you.

I'm not too sure about honey powder, I haven't read it yet, will take a look. I wonder if it's manuka honey? it has been used to irradicate biofilms. They even make bandages with it. But it can feed other stuff at the same time. That's the beauty of xylitol. It doesn't do that. Lactoferrin isn't going to irritate the lining either. You just have to give the things that will repair it. The zinc/carnosine (already bonded together supplement) will circumvent the possibility of it picking up copper or iron...one of the major concerns with carnosine. I'm convinced this needs to be given to lots of our gut damaged kids. Their intestines are literally raw. Parasite treatment has been one of our best interventions too. We were spinning our wheels until we started going after them, on a regular consistant basis. I also wonder why we're still not using glutamine. I know the fear around glutamate, but for many in the gut dysbiosis world, it is crucial to use this to get well and rebuild the gut lining. We keep killing stuff, and leaving raw sore tissue underneath. L-histadine helps with tissue repair. There's so much we're NOT doing to really heal the gut. Just diets, killing yeast, using enzymes..it's not enough.

The trouble for us, has been the mold exposure. Most of you really need to read some of this stuff, it is right on and I think it can have a lot to do with the dysfunctional immune system. These damaged buildings are everywhere. Dr. Shoemaker is doing some great things getting his patients well. (many treatments I know would help our kids as well- like using VIP --certain people have a genetic defect in this peptide and it really diminishes the inflammatory cascade going on. The nasal spray, the binders for the toxins).

I still believe in the metal connection. We have a local doctor who has cured many things with chelation-even reaction in mold exposure. She's a genius. Really. (Too bad she doesn't treat children). The pregnant mom will dump most of her mercury into the unborn fetus. Even without that child having one exposure, he gets his mom's burden.