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Re: I've come up with a biofilm protocol...what do you think?

Posted: Thu Jan 05, 2012 6:59 pm
by JeniB
http://mdheal.org/leakygut.htm

(1) Epidermal Growth Factor (EGF) is a polypeptide that stimulates growth and repair of epithelial tissue. It is widely distributed in the body, with high concentrations detectable in salivary and prostate glands and in the duodenum. Saliva can be a rich source of EGF, especially the saliva of certain non-poisonous snakes. The use of serpents in healing rituals may reflect the value of ophidian saliva in promoting the healing of wounds. Thorough mastication of food may nourish the gut by providing it with salivary EGF. Purified EGF has been shown to heal ulceration of the small intestine [131].


anyone hear of Epidermal Growth factor? This stuff needs more looking into to rebuild the mucosal wall.

Re: I've come up with a biofilm protocol...what do you think?

Posted: Sat Jan 07, 2012 3:03 pm
by Fernanda
alberta wrote:FREEEEEAKING GENIUS, JB!!!!


My first thought!

Re: I've come up with a biofilm protocol...what do you think?

Posted: Tue Jan 10, 2012 4:58 pm
by Fernanda
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Start with virastop. on empty stomach to BREAK through the fibrin in the vessels and intestines, 30 minutes after, give a mixture of xylitol and lactoferrin along with pectasol - this will grab all of the minerals in the biofilm. Virastop hasn't caused any stomach trouble with us at the right dose. And then soon after, give a zinc/carnosine supplement to get into the ulcerations.

How soon should one give the zinc/carnosine?

Thanks!

Re: I've come up with a biofilm protocol...what do you think?

Posted: Wed Jan 11, 2012 11:45 am
by JeniB
I give it right after. before a meal. So far, so good. I'm just going to do this for 2 weeks total. I'm leary of sugar substitutes for too long.. Still seems safer than antibiotics. Lactoferrin also breaks down into amino acids, just like using whey protein. :)

Re: I've come up with a biofilm protocol...what do you think?

Posted: Wed Jan 11, 2012 12:22 pm
by Mesut
Hi Jen

what whey product is it ? and does it contain Casein ?

2 years ago we did GFCF for 4-5 months without any change in behavior during, or even after we discontinued.

Last year then I bought RenewPro whey.
I don't know if it was because of this whey, he got extremely hyper so we stopped (he was very difficult to manage and calm down). Since then I did not try again.
We gave whey at that time to increase his Gluthatione level but now, I see it has good amount of Lactoferrin in it.
Maybe I should re-try.

Mesut

Re: I've come up with a biofilm protocol...what do you think?

Posted: Wed Jan 11, 2012 1:43 pm
by JeniB
Whey is going to probably raise glutamate, which would explain the hyperactivity. I'm not seeing that with pure lactoferrin. I DID see it with the chewing gum that had aspartame in it-which converts to glutamate and aspartic acid. Whey doesn't have as much lactoferrin as the lactoferrin supplments do. They will say pure lactoferrin. I did see a tiny bit of spaciness the first dose. But, we also use raw cow's cheese without this reaction, so I don't feel it was the casein. If you have a severe milk allergy, it might be a problem. Then maybe try virastop to break up the fibrin and the xylitol, without the lactoferrin. I think it's worth giving a try however.

Re: I've come up with a biofilm protocol...what do you think?

Posted: Wed Jan 18, 2012 8:59 am
by dabaxter
AnxiousDad wrote:Has anyone heard of Rob Nijssen’s Protocol of netherlands. This is the guy who cured not just recovered his son's severe autism by treating parasites.
http://www.threewells.nl/index.en.php/I ... rotocol_EN


AD,
Are you going to give this protocol a try?

Re: I've come up with a biofilm protocol...what do you think?

Posted: Wed Jan 18, 2012 9:00 am
by dabaxter
JeniB wrote:http://gut.bmj.com/content/56/2/168.abstract


This is a good find JB. It sounds like everyone should be taking ZnC.

Re: I've come up with a biofilm protocol...what do you think?

Posted: Wed Jan 18, 2012 10:41 am
by JeniB
I probably won't use this protocol, I didn't see much in there that would really kill parasites and honey is a big no no for our bacterial problem.

we seem to be doing great with the xylitol/lactoferrin/virastop. Some other things like twice a day thiamine has also helped majorly.. some physical delays are finally resolving and much more speech. I believe that the type of gut bacteria and a few other things had to play in our need for thiamine. and much more of it and giving it time to work.

http://www.ansci.cornell.edu/plants/tox ... inase.html

follow this. For us, we had the exact same thing show up with the head tilt for my son. The ataxia and confusion, getting "lost". I introduced rice way too early for my guy, having a boy after 2 girls, people kept telling me he needed more food being a boy and I started it at 4 months old :shock:

white rice will induce thiamine deficiency, not only that so will mold, clostridia sporogenes and too much tea (I live in NC, I've had lots of sweet tea over my lifetime!)

when we introduced the high levels of B6- I started seeing problems and it turns out he is in a major need for thiamine.

Jenib

Re: I've come up with a biofilm protocol...what do you think?

Posted: Wed Jan 18, 2012 11:02 am
by JeniB
http://www.merckvetmanual.com/mvm/index ... 102000.htm

this was interesting on sulfur inducing the deficiency as well. This could explain more bacterial flares after chelation or bad reaction to sulfur foods and yeast? There's some great info on this website. Veterinarians are much smarter than peds these days :lol:

Re: I've come up with a biofilm protocol...what do you think?

Posted: Wed Jan 18, 2012 11:15 am
by amanda NC
We started both the xylitol nose spray and the Virastop today. I tried the xylitol spray for myself--and had immediate clearing of my always mildly stuffy nose! Wow! And a mild headache that went away quickly.

I backed off on my dose of lactoferrin and xylitol; I had been doing 1 1/2 tsp xylitol and 250 mg lactoferrin once a day, and when I doubled that to twice a day, my guy began to get a very gravelly throat. Which might be good, I think. But went back to once a day and will add in the virastop for the daily dose and watch to see what happens before we go higher.

JeniB, could you please clarify how much lactoferrin you are doing with each dose? You are doing several doses daily?

Also, anyone consider adding in an antiparasitic for a week or something during this protocol, just in case there are some parasite stages of some kind that are getting released from the biofilms?

Finally, anyone have any thoughts on whether the xylitol is killing off good bacteria along with the bad? Is this like taking antibiotics, and damaging the gut ecology again? I have not been fermenting--I implanted some bad bacteria from making my own yogurt from raw milk, and really messed up my stomach after having pretty darned near perfect digestion for a couple of years. What a pain. So right now I'm just doing acidophilus. I'll need to reconsider doing a heavier probiotic protocol again.

Re: I've come up with a biofilm protocol...what do you think?

Posted: Wed Jan 18, 2012 3:46 pm
by Mesut
amanda NC wrote:Finally, anyone have any thoughts on whether the xylitol is killing off good bacteria along with the bad? Is this like taking antibiotics, and damaging the gut ecology again?


Hi Amanda

looks like it is proven to be good for the gut bacteria


http://www.ncbi.nlm.nih.gov/pubmed/17995737

http://www.ncbi.nlm.nih.gov/pubmed/4076932

Mesut

Re: I've come up with a biofilm protocol...what do you think?

Posted: Wed Jan 18, 2012 6:40 pm
by jennylynne
Jen- I started rice at 3 mo old. Pedi told me to try rice cereal in her bottle for relux
He didn't like using prevacid or zantac. So I used rice cereal until 5 mo . At 4 mo she
wanted food , so I started rice cereal on a spoon. She only got one meal a day until about
6 mo old. Then oatmeal and all veggies.

I was a FTM so I didn't see why it would harm her. I BF YDD until 5 mo with only 1-2 oz formula
a day after 3 mo ( nutrimegin). At 5 mo, our pedi( our DAN) said it was ok to feed her rice cereal
for a mo but wait for fruit/veggies. he only said that bc she was reaching for food and had teeth. She
had 4 teeth at 6 mo old.

Maybe that is why she is doing SO much better NOT being gluten free.

I tried the brewers yeast and I think the free glutamates was an issue for her. No hyperactivity from whey protein though. I'll give that sparingly...just for protein intake when she won't eat meat. Not an everyday thing now that we are getting lactoferrin...

Re: I've come up with a biofilm protocol...what do you think?

Posted: Wed Jan 18, 2012 7:32 pm
by dabaxter
The second link suggests no major changes in gut flora.

The influence of dietary xylitol on the quantity and quality of faecal microflora was studied in Wistar albino rats, CD-1 mice and healthy human volunteers. In animals, the effects of xylitol adaptation and of 4-wk xylitol feeding were examined. No major changes in the numbers of total aerobic or anaerobic bacteria, aerobic streptococci, anaerobic streptococci or yeasts were observed, although there was evidence of a dose-dependent decrease in the numbers of aerobic streptococci in the faeces. However, xylitol feeding caused a clear shift in the rodent faecal microbial population from Gram-negative to Gram-positive bacteria.


So while it may have a potentially positive effect on reducing strep in the gut, shifting from gram-negative to gram-positive bacteria suggests making an environment more favorable to clostridia, which falls under gram-positive. Be very careful.

http://www.ppdictionary.com/gpbac.htm

Re: I've come up with a biofilm protocol...what do you think?

Posted: Fri Jan 20, 2012 4:13 pm
by JeniB
Xylitol and lactoferrin, together have a synergistic effect. They actually prevent spore formation. which I think is what makes clostridia so hard to get rid of. We're still not seeing any flare-ups of bacteria. Just still doing very well. I really hope Amanda that it works for you or that you notice something good from it.

Re: I've come up with a biofilm protocol...what do you think?

Posted: Mon Jan 23, 2012 3:34 pm
by AnxiousDad
I believe that whatever parasite my son has, I have too. So, i decided to work on myself as well along with my son. I have been taking 250 mg of Lactoferrin and Xylitol for the last few days. I feel really bloated and my intestines feel tender and inflammed. I was reading some forums where people use this protocol and it seems within a week people strat showing some symptoms of die off similar to mine, which is an indication that the biofilm is being busted.
I have to yet see any die off symptom in my son. Even if he is having any tenderness in his tummy he cant tell me. But i dont see any obvious exteriorization of the die off in my son. He is doing 100 mg Lactoferrin with 1 teaspoon of xylitol everyday. I have been doing 250 mg Lactoferrin with 2 teaspoon of xylitol everyday.

Re: I've come up with a biofilm protocol...what do you think?

Posted: Mon Jan 23, 2012 11:16 pm
by JeniB
That's interesting AD with the pain you're having. Have you thought about adding virastop for yourself-a binder maybe too? reason I'm asking is that we're using this too and it works as a major anti-inflammatory and it digests debris that causes inflammation. Maybe because we're farther along, but I didn't see a regression with this at all. this has been the only thing I've done that hasn't had some kind of regression with it. I've added in more biotin and thiamine which I think is also helping him. He is "physically" changing rapidly. Can jump most days now with both feet together, we'd see this on occasion in the past, but now, he's just improving everyday. I give it three times a day to stay on top of it, like I do everything else! I think many make the mistake of giving things once and it grows back. I'm not using as much xylitol in each dose, just a gram (the scooper that came with my probiotics) looks to be about 1/4 a teaspoon. But i'm giving 3x a day, along with the virastop. If you're worried it's too strong, try just serripetidase enzyme instead. Also, if it's true that other minerals are in the biofilm you may also have loose calcium, aluminum and copper too, which I think are also in there and the copper will be caustic, causing inflammation too. We've done a lot of work on my son's copper and aluminum so far, so maybe that is causing problems for you. Moly., B6 and manganese will deal with copper and silica and mag. glycinate with aluminum. They have repeatedly found aluminum in the amalyoid plaque in alzheimer's brains btw. These bacteria produce plaque build up-using minerals and metals to diffuse treatment with zinc and other necessary healing nutrients. First it's sticky and gooey and then it hardens into a plaque.

I imagine that the lactoferrin is really going to help with your son's Iron issues too. If he's not highly allergic to milk that is. Did your son ever develop a head tilt or turn it upwards as a baby during development? crusty stuff on the scalp and behind the ears at all?

Re: I've come up with a biofilm protocol...what do you think?

Posted: Tue Jan 24, 2012 1:43 am
by Stjude0011
JeniB wrote:
I imagine that the lactoferrin is really going to help with your son's Iron issues too. If he's not highly allergic to milk that is. Did your son ever develop a head tilt or turn it upwards as a baby during development? crusty stuff on the scalp and behind the ears at all?


JenB, please tell me more about this head tilt and crusty stuff behind ears. Shortly after my son has molluscum he started tilting his head and till this day he has crust behind ears which I clean with diluted GSE goes away then returns.

I have both virastop and xylitol (love this) on hand. My son is 2 and heading into round 18 with dmsa/ala and on all the supporting supps, candidase, culturelle, fish oil.

My son has no parasites and mild controllable yeast.

We also introduced earths best rice cereal slightly before 4 months because his feedings just werent filling enough.

Re: I've come up with a biofilm protocol...what do you think?

Posted: Tue Jan 24, 2012 1:44 am
by AnxiousDad
JeniB, I also got a cold sore which is Herpes Simplex i believe. This is very consistent with what people in the Lactoferrin, Xylitol protocol have been stating as a die off. I feel terrible, bloated and inflammed. What binder should i use for myself?? Activated Charcoal/Apple Pectin?? Dosage for me and for my son please?

While, I think that you are the best researcher around, I would like to differ on the copper theory. My belief is just a theory, but i think i am right. What is happening i this: because of the biofilm and the parasite situation, the body is growing deficient of copper. Because the body is directing all the copper that it can muster to the intestine where it will be used by the WBC to fight the invaders. As a result the cells in the other part of the body, brain, nervous system etc are not getting the necessary copper. Copper is also very very important for neurotransmitters and also for iron metabolism. Now you might ask why i think that? A valid question to which i found the answer in homeopathy. Wherever i looked in the homeopathy, the best way to beat parasites of any kind is a copper remedy. For instance Cuprum Oxydatum Nigrum, Nux Vomica(Both Copper Remedies). I think MellowJello would agree with me. Also, alberta has mentioned to me that her daughter's apraxia had lifted greatly when she added trace amount of copper.
Now all this is just my theory and i dont recommend adding copper in supplemental form to anyone because i am just hypothising. But i am willing to take the risk and add a tiny amount of copper to see what it does to the global apraxia that my son has.

Read it here:
http://health.hpathy.com/worms-symptoms ... t-cure.asp

#Cuprum oxydatum nigrum. [Cupr-o]
Zopfy in his sixty years' practice asserts that this remedy will remove all kinds of worms, cure trichinosis, and even tapeworm. He gives it in small doses, about the 1X, in alternation with Nux vomica four or five times a day for four to six weeks, which always suffices to cure tapeworm without causing the patient any in convenience whatever.

Also, PEKANA Helmin remedy that i am using for my son has Cuprum oxydatum nigrum.

Re: I've come up with a biofilm protocol...what do you think?

Posted: Tue Jan 24, 2012 2:17 am
by AnxiousDad
JeniB,
I would also like to add this. So, the way i differ with your theory is this:
I dont think that the biofilm has copper in it. I think it does have calcium and iron in it. Like you said in an earlier post, it is almost impossible to have copper deficiency because we have enough dietary intake of copper. I concurr 100 percent. But none of it is going where it is needed. All the copper is going into helping the wbc in the gut to fight the parasitic infection. A recent study says this pathogenic/parasitic organism is sutterella and it can only be found using biopsy. I think that the study is accurate.
So where i differ with your theory, is that once the biofilm is broken and the parasites are being taken care of(by the immune system or herbal or antibiotic medicine), the body lets a sigh of relief and decides to send copper(from dietary sources) to other places, than just the gut where the infection exists. As opposed to what you have suggested that the copper from the biofilm is released. Carnosine as you know also mobilizes copper. So i am thinking that it is actually mobilizing the dietary copper so that not all the copper goes into fighting the infection. This is good in the sense that copper is available for other important bodily function. It is also bad that in the sense that you are trying to overide the body's mechanism of taking care of the parasitic infection.

Does this make any sense to you?