autismnhusa wrote:Father of 2,
Is your son still taking tenex, galantamine? Anything else? My son tried tenex and quetiapine fumarate (the quetiapine fumarate worked for 1 day). Tenex did not work at all. My son is going to see neuro again. Any suggestion is welcome.
We are taking Tenex, 0.5mg in the morning and 0.75mg in the evening. The effect is very very mild because my son still has mood swings on it. I tried to reduce the dose, but he started sleeping worse. So, I keep it for now until I find a better alternative.
We haven't been taking Galantamine since February. I wanted to see what HBOT did on its own. And the effect from HBOT is great. My son is finally playing with toys properly, like a 2-3 year old (he is 6). He draws pictures and puts boys that he knows from school into them. He finally learned how to swing on his own. I thought that he will never learn. Reading and writing has never been a problem, he is ahead in this area. Language and understanding continues being his major problems. He can talk simple sentences, but getting any info from him is impossible. Although he can finally say where he lives. Our next step is to see a local private neurologist specializing in autism and get an advice regarding treating abnormal EEG. Most likely we'll end up trying Lamictal this summer. That should reduce EEG spiking and improve the mood. Hopefully, we'll be able to stop Tenex. I may re-start Galantamine too, because it really helps him, but temporarily.
By the way, we re-started Leucovorin Calcium at 5mg and saw some improvements in the first week, but after about 2 weeks he started being very irritable and hitting his head. So, we stopped it, and he is OK now.