FatherOf2 wrote:Dani wrote:I don't think all the gains last. Some did, but others faded, but while it happened, the immediate improvements were nothing short of amazing. I've tried lots of anti-inflammatories over the years including fish oil, NSAIDs, chelation, Enhansa and many more that you didn't list, but none of them brought these results like what we saw with a steroid. None. IVIG is too expensive and our qualitative plasam immune test didn't indicate a medical need for it so insurance won't cover it. Doing Prednisone actually showed me we're not really addressing a root cause of her autism. It showed me that all the fish oil, NSAID and anti-inflammatories in the world we've done aren't enough because in those three weeks we saw more speech improvements than I saw in one year with the other anti-inflammatories.
We visited an allergist last Friday. He prescribed steroidal nasal sprays and allergy shots for my son, who has been having stuffy nose due to allergy to dust mites. We started nasal sprays two days ago and both days saw significant improvements in social behavior and language. Since the nasal spray (Nasonex) contains corticosteroid, a small percentage of which gets into the blood stream, I am suspecting that the improvements are coming from the reduction in brain inflammation. My son did two things in the last two days, which he has never done before:
1. He greeted his school aide by saying "Hi, Bill" the minute he saw him without any prompts.
2. He initiated a conversation with an adult who had a broken leg by asking "What happened to your leg? Did you ride a scooter and fell?" And then he pretended to be a doctor and said "Let me take an x-ray of your leg. This leg is OK, but this one has a broken bone..." He also for the first time spontaneously said to my wife "Mom, I had a dream that I will go to a different school". And then started describing where the new school is located.
If these gains continue, corticosteroids will move to #1 place on my list of things that helped most, ahead of HBOT, Rhodiola, Galantamine, and Piracetam. I am getting to the same conclusion that the most effective treatment of autism for some is fighting brain inflammation. It addresses the root cause. The only challenge is to make the gains stick. Giving corticosteroids or supplements is not a long term solution. If somebody found a long-term solution for the brain inflammation, please post here. I am thinking of immunotherapy, IVIG, and stem cells. I am still waiting for the clinic to get vials with allergen for allergy shots. These shots may re-balance the immune system and give more permanent gains.
it's happy to see your son goes will with it! does this one need prescription or not? I'm also looking on Rhodiola today on Marya's post, does it help on speech as well?