Pirsig wrote:I do not understand this at all. After 2 years of various biomed interventions, this has been one of the best interventions I have tried so far (alongwith MB12 and HBOT). So, we have an intervention that is very inexpensive and works very well (according to ARI treatment surveys) but most DAN's do not use AC protocol.
The ARI treatment survey was stopped over 6 years ago. It wasn’t very meaningful anyway – just a counting up of parental votes with vague parameters among a largely treatment-biased group of respondents from the years 1967 – 2009. Once the WWW came about, it pretty much served as a reflection of popular treatments over the years (these have waxed and waned). It is not segregated, for instance, into year or type of “detox-chelation” – not Cutler’s protocol, DAN protocol, transdermal DMPS (Buttar), OSR (Boyd Haley), autism clay, saunas, foot baths, cilantro, or anything else.
You can read the position papers – section entitled Alpha-lipoic acid:Pirsig wrote:Not sure if they think its very inconvenient, or if they do not know about this, or political reasons, or safety concerns?? It would be good to have an answer.
2001: http://www.autismangelspurse.com/MERCUR ... ATION.html
I think Bernard Rimland had the best of intentions when establishing the Autism Research Institute – he made a historic contribution to autism debunking the thinking perpetuated by Bettelheim (refrigerator mothers). The ARI later appeared to dissolve into a promotional venue for DAN, focusing attention/treatment interest on causation beliefs. A DAN doctor isn’t/wasn’t necessarily anything special, all one needed to do to be a DAN doc is claim to be one (to be listed on the ARI recommended physician page, all one needed to do was attend one workshop each year). To be called the ”Autism Research Institute,” they were/are notably short on conducting research, as well as acknowledging research which does not support their treatment beliefs.
The thinking of the alternative community (DAN) around the time the chelation/metal detox papers were assembled was centered around mercury causation (mostly via vaccines). Less-than-credible practitioners sold the notion that autism is mercury poisoning to parents, along with treatments to reverse it, and this was spread all over and popularized by less-than-credible orgs like Generation Rescue and Age of Autism. See news interview of JB Handley (of Generation Rescue and Age of Autism) in 2005 (just didn’t pan out at all like he proclaimed):
Cutler's chelation recovery claims mirror these^ silly claims (chelate and the child will be completely "NT"/normal within 2 years ), except that Cutler's plan takes years (and years) longer -- because, he claims, it is safe. JB Handley (and the practitioners he promoted) had nothing to support his bombastic claims, and neither does Cutler.
Pirsig wrote:Here is an old conversation from yahoo groups between Amy Holmes and Andy Cutler. Very informative. Its really interesting to read her thoughts on mainstream, regular pediatricians and how most of them do not care about kids on the spectrum. This has been my experience as well and if you read yahoo groups, thousands of parents with kids on the spectrum face the same ignorance and apathy in their pediatrician's office.
Ironically, perhaps the most ignorant and least respectful comment I have ever heard/seen a physician utter was from Amy Holmes herself – in reference to her own teen-aged son – in the article previously linked:
"We didn't even think the kid had a brain," says Holmes, a retired medical doctor.
Even more ironic, she said it years after she proclaimed the amazing results from her chelation protocol when he was six.