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Re: How to reduce stimming

Posted: Thu Aug 03, 2017 12:57 pm
by FatherOf2
somebody wrote:Did anything work? Our ds still constantly visually stims and his eczema is getting worse, not sure what to do, even memantine has stopped working, NAC etc never did :(

I haven't found anything that reduces stimming. Memantine worked for a month a few years ago. I would expect it to lose efficiency over time because brain always counteracts any receptor agonists or antagonists. In Alzheimers studies, Memantine stopped working after about 6 months. My son still stims. I wrote in My Supplements thread about Phosphatidylserine and cortisol and how that affects stimming and SIBs in my son. I will start looking into his thyroid issues. Hopefully this can address multiple symptoms, SIBs, aggression, stimming, anxiety. There is a famous doctor who treats autistic children by boosting thyroid.

Re: How to reduce stimming

Posted: Thu Aug 03, 2017 1:07 pm
by somebody
Just ordered some Charlottes Web CBD oil, seems to work anecdotally in some cases. Otherwise may try AC chelation.

Re: How to reduce stimming

Posted: Thu Aug 03, 2017 1:20 pm
by CdB
somebody wrote:Did anything work? Our ds still constantly visually stims and his eczema is getting worse, not sure what to do, even memantine has stopped working, NAC etc never did :(


Eczema is easy, find a single strain probiotic tha has L. Plantarum in it, yarrow has it, do 2-4 pills a day, start with one for few days just to see how it's going and build up to 4 a day taken 30 minutes before meal. Once you build to 4 pills a day you will see a noticable difference in two weeks.

I have never found anything effective for stimming, my kid steams all day with sticks.

Re: How to reduce stimming

Posted: Thu Aug 03, 2017 5:39 pm
by i-jerry
Nikkie111 wrote:
i-jerry wrote:
thanks a lot Nikkie, your suggestion is so helpful. I'll google Mast cell and also stop b12 for now until we receive 23 and me report. We haven't use anythinkg for histamine yet, our doctor didn't mention it to us but I'll research it now.
Do you think Valtrex + LDN might do the similar thing compare with immunovir and cycloferon?
Thanks again, Jerry

Pls do let your doc know if you're about to stop b12, he might know something we don't :wink:
Also you could ask him about mast cell issue as well, there are loads you can do about it

Since you started biomed you haven't seen any progress at all?


We had progress but still not in the 'normal' stage. We started biomed since last July, and he talks more but still not the 5 years level.
He doesn't talk English in sentences in January, but now he could ask his teacher for a snack at school. But we still couldn't have a proper conversation, and he doesn't ask or understand how to answer 'why' question.
He could read a book but doesn't fully understand. His math is really good and could do ks1 test paper ( he will attend year 1 this sept).
His end of year report shows his math and writing is on expected level, but reading, social, communication, language,,,,, all on emerging level.

We are currently focusing on his language and social ability. Thank you for your advice i will book an appointment with our doctor.

Re: How to reduce stimming

Posted: Fri Aug 04, 2017 12:22 am
by DanceProphecy
That is a tough situation of you. I hope he reduced his stimming.

Re: How to reduce stimming

Posted: Fri Aug 04, 2017 1:44 am
by Nikkie111
i-jerry wrote:
Nikkie111 wrote:
i-jerry wrote:
thanks a lot Nikkie, your suggestion is so helpful. I'll google Mast cell and also stop b12 for now until we receive 23 and me report. We haven't use anythinkg for histamine yet, our doctor didn't mention it to us but I'll research it now.
Do you think Valtrex + LDN might do the similar thing compare with immunovir and cycloferon?
Thanks again, Jerry

Pls do let your doc know if you're about to stop b12, he might know something we don't :wink:
Also you could ask him about mast cell issue as well, there are loads you can do about it

Since you started biomed you haven't seen any progress at all?


We had progress but still not in the 'normal' stage. We started biomed since last July, and he talks more but still not the 5 years level.
He doesn't talk English in sentences in January, but now he could ask his teacher for a snack at school. But we still couldn't have a proper conversation, and he doesn't ask or understand how to answer 'why' question.
He could read a book but doesn't fully understand. His math is really good and could do ks1 test paper ( he will attend year 1 this sept).
His end of year report shows his math and writing is on expected level, but reading, social, communication, language,,,,, all on emerging level.

We are currently focusing on his language and social ability. Thank you for your advice i will book an appointment with our doctor.

Ok I see- good progress though so far, you should be very proud x

Re: How to reduce stimming

Posted: Sat Aug 05, 2017 4:50 pm
by i-jerry
Nikkie111 wrote:
i-jerry wrote:
Nikkie111 wrote:Pls do let your doc know if you're about to stop b12, he might know something we don't :wink:
Also you could ask him about mast cell issue as well, there are loads you can do about it

Since you started biomed you haven't seen any progress at all?


We had progress but still not in the 'normal' stage. We started biomed since last July, and he talks more but still not the 5 years level.
He doesn't talk English in sentences in January, but now he could ask his teacher for a snack at school. But we still couldn't have a proper conversation, and he doesn't ask or understand how to answer 'why' question.
He could read a book but doesn't fully understand. His math is really good and could do ks1 test paper ( he will attend year 1 this sept).
His end of year report shows his math and writing is on expected level, but reading, social, communication, language,,,,, all on emerging level.

We are currently focusing on his language and social ability. Thank you for your advice i will book an appointment with our doctor.

Ok I see- good progress though so far, you should be very proud x


Yes but still has a long way to go. Does your son has language gain from valtrex or anti viral treatment? Also we had a difficult bowel movement since adding valtrex. I even try 2 oxygen powder at the same time but doesn't help much.

Re: How to reduce stimming

Posted: Sun Aug 06, 2017 12:44 am
by Nikkie111
i-jerry wrote:
Nikkie111 wrote:
i-jerry wrote:
We had progress but still not in the 'normal' stage. We started biomed since last July, and he talks more but still not the 5 years level.
He doesn't talk English in sentences in January, but now he could ask his teacher for a snack at school. But we still couldn't have a proper conversation, and he doesn't ask or understand how to answer 'why' question.
He could read a book but doesn't fully understand. His math is really good and could do ks1 test paper ( he will attend year 1 this sept).
His end of year report shows his math and writing is on expected level, but reading, social, communication, language,,,,, all on emerging level.

We are currently focusing on his language and social ability. Thank you for your advice i will book an appointment with our doctor.

Ok I see- good progress though so far, you should be very proud x


Yes but still has a long way to go. Does your son has language gain from valtrex or anti viral treatment? Also we had a difficult bowel movement since adding valtrex. I even try 2 oxygen powder at the same time but doesn't help much.

Yes we had recovery from antivirals!
Re constipation I got Mag02 from amazon and give it at bedtime on empty stomach and alternate with glass if concentrated pruine juice which I give two hours before he wakes up x

Re: How to reduce stimming

Posted: Sun Aug 06, 2017 5:58 pm
by i-jerry
Nikkie111 wrote:
i-jerry wrote:
Nikkie111 wrote:Ok I see- good progress though so far, you should be very proud x


Yes but still has a long way to go. Does your son has language gain from valtrex or anti viral treatment? Also we had a difficult bowel movement since adding valtrex. I even try 2 oxygen powder at the same time but doesn't help much.

Yes we had recovery from antivirals!
Re constipation I got Mag02 from amazon and give it at bedtime on empty stomach and alternate with glass if concentrated pruine juice which I give two hours before he wakes up x


I'm so happy to see your son recovered from antivirals treatment and it gives to me a lot of hope :D :D :D
Does it safe to use mag02 every day or every other day?
Also, may I know how long do you treat your son under antiviral treatment? I know every child is different but I just want to tell myself i have to be patient and wait for magic happen. We are on 15 days with valtrex now and I will up his dose to 1000mg tomorrow. I think he has small gains so far. He could play Gravity Maze by himself without help from me. and he said ' hey guys today we are using clay to make number blocks one'. He watched this video on youtube a lot of time but today he just said this 'long' sentence in English to me, I was so surprised.
By the way, please still come to the forum to help :wink: :wink: :wink:
Best to all your family, Jerry

Re: How to reduce stimming

Posted: Tue Aug 15, 2017 10:52 am
by Nikkie111
i-jerry wrote:
Nikkie111 wrote:
i-jerry wrote:
Yes but still has a long way to go. Does your son has language gain from valtrex or anti viral treatment? Also we had a difficult bowel movement since adding valtrex. I even try 2 oxygen powder at the same time but doesn't help much.

Yes we had recovery from antivirals!
Re constipation I got Mag02 from amazon and give it at bedtime on empty stomach and alternate with glass if concentrated pruine juice which I give two hours before he wakes up x


I'm so happy to see your son recovered from antivirals treatment and it gives to me a lot of hope :D :D :D
Does it safe to use mag02 every day or every other day?
Also, may I know how long do you treat your son under antiviral treatment? I know every child is different but I just want to tell myself i have to be patient and wait for magic happen. We are on 15 days with valtrex now and I will up his dose to 1000mg tomorrow. I think he has small gains so far. He could play Gravity Maze by himself without help from me. and he said ' hey guys today we are using clay to make number blocks one'. He watched this video on youtube a lot of time but today he just said this 'long' sentence in English to me, I was so surprised.
By the way, please still come to the forum to help :wink: :wink: :wink:
Best to all your family, Jerry

Bless you -I'd love to say he's recovered but I am not allowed to as he still regresses from time to time although more rarely plus he still needs his meds/supplements, I wouldn't dare not give him his Valtrex etc - have to say though he's still progressing and the level of conversation is shooting up weekly :)
don't worry I'll still be here as unfortunately I am treating my little one as well who seems to have even worse issues :?
with regards to mag07 I use it 2-3 times a week alternating with prune juice, it should be safe I am not sure, but stool need to come out so prob this is one of the safest ways - if prune juice works better go for that but remember to give a really concentrated one on an empty stomach
With regards to AV treatment it's been our 8th month on Valtrex he's on about 1200mg - it's amazing that your kid is progressing, please don't be disheartened if you see any regression, just keep on supporting the liver and giving antioxidants. You'll see even more progress as the months go by!!!

wishing you the best x

Re: How to reduce stimming

Posted: Thu Aug 17, 2017 5:06 pm
by i-jerry
Nikkie111 wrote:
i-jerry wrote:
Nikkie111 wrote:Yes we had recovery from antivirals!
Re constipation I got Mag02 from amazon and give it at bedtime on empty stomach and alternate with glass if concentrated pruine juice which I give two hours before he wakes up x


I'm so happy to see your son recovered from antivirals treatment and it gives to me a lot of hope :D :D :D
Does it safe to use mag02 every day or every other day?
Also, may I know how long do you treat your son under antiviral treatment? I know every child is different but I just want to tell myself i have to be patient and wait for magic happen. We are on 15 days with valtrex now and I will up his dose to 1000mg tomorrow. I think he has small gains so far. He could play Gravity Maze by himself without help from me. and he said ' hey guys today we are using clay to make number blocks one'. He watched this video on youtube a lot of time but today he just said this 'long' sentence in English to me, I was so surprised.
By the way, please still come to the forum to help :wink: :wink: :wink:
Best to all your family, Jerry

Bless you -I'd love to say he's recovered but I am not allowed to as he still regresses from time to time although more rarely plus he still needs his meds/supplements, I wouldn't dare not give him his Valtrex etc - have to say though he's still progressing and the level of conversation is shooting up weekly :)
don't worry I'll still be here as unfortunately I am treating my little one as well who seems to have even worse issues :?
with regards to mag07 I use it 2-3 times a week alternating with prune juice, it should be safe I am not sure, but stool need to come out so prob this is one of the safest ways - if prune juice works better go for that but remember to give a really concentrated one on an empty stomach
With regards to AV treatment it's been our 8th month on Valtrex he's on about 1200mg - it's amazing that your kid is progressing, please don't be disheartened if you see any regression, just keep on supporting the liver and giving antioxidants. You'll see even more progress as the months go by!!!

wishing you the best x


sorry to hear your little one is not well. But I believe he will get better and better as his older brother.
We are on 3rd weeks with valtrex and 2 weeks on LDN ( 2ml) so far, I really could say he had a big leap on his language but come with behaviour issues and OCD. I'll keep doing on it and hope we could see a bright future very soon. :D

Re: How to reduce stimming

Posted: Thu Aug 17, 2017 5:24 pm
by Nikkie111
That's fantastic news (the language part!)
Are you doing LDN cream or oral?

Re: How to reduce stimming

Posted: Fri Aug 18, 2017 4:43 am
by Marya
Nikkie111 wrote:Yes we had recovery from antivirals!
Re constipation I got Mag02 from amazon and give it at bedtime on empty stomach and alternate with glass if concentrated pruine juice which I give two hours before he wakes up x

Hi Nikkie, would you please recommend any natural anti-viral from these Astragalus, Echinacea, Garlic, Ginger, Goldenseal and Milk Thistle?
Or if you have tried any other natural anti viral, please let me know. I really need to try an anti viral.

Re: How to reduce stimming

Posted: Fri Aug 18, 2017 5:39 am
by Nikkie111
Marya wrote:
Nikkie111 wrote:Yes we had recovery from antivirals!
Re constipation I got Mag02 from amazon and give it at bedtime on empty stomach and alternate with glass if concentrated pruine juice which I give two hours before he wakes up x

Hi Nikkie, would you please recommend any natural anti-viral from these Astragalus, Echinacea, Garlic, Ginger, Goldenseal and Milk Thistle?
Or if you have tried any other natural anti viral, please let me know. I really need to try an anti viral.

The only ones I saw results for acute (not sure about dormant/chronic) was elderberry extract, Chinese skullcap , fresh ginger juice and propolis liquid (absolutely disgusting!!) and high dose vitamin c or liposomal If possible x

Re: How to reduce stimming

Posted: Mon Sep 25, 2017 7:29 am
by i-jerry
Nikkie111 wrote:
Marya wrote:
Nikkie111 wrote:Yes we had recovery from antivirals!
Re constipation I got Mag02 from amazon and give it at bedtime on empty stomach and alternate with glass if concentrated pruine juice which I give two hours before he wakes up x

Hi Nikkie, would you please recommend any natural anti-viral from these Astragalus, Echinacea, Garlic, Ginger, Goldenseal and Milk Thistle?
Or if you have tried any other natural anti viral, please let me know. I really need to try an anti viral.

The only ones I saw results for acute (not sure about dormant/chronic) was elderberry extract, Chinese skullcap , fresh ginger juice and propolis liquid (absolutely disgusting!!) and high dose vitamin c or liposomal If possible x


Hi Nikkie, how much vitamin C do you give it to your older boy? I give him 1.5g per day, but thinking about more or liposomal vc

Re: How to reduce stimming

Posted: Mon Sep 25, 2017 8:16 am
by Nikkie111
i-jerry wrote:
Nikkie111 wrote:
Marya wrote:Hi Nikkie, would you please recommend any natural anti-viral from these Astragalus, Echinacea, Garlic, Ginger, Goldenseal and Milk Thistle?
Or if you have tried any other natural anti viral, please let me know. I really need to try an anti viral.

The only ones I saw results for acute (not sure about dormant/chronic) was elderberry extract, Chinese skullcap , fresh ginger juice and propolis liquid (absolutely disgusting!!) and high dose vitamin c or liposomal If possible x


Hi Nikkie, how much vitamin C do you give it to your older boy? I give him 1.5g per day, but thinking about more or liposomal vc


I'm giving 5ml Lipolife which is around 1gr... It's fantastic really strong but very expensive!

Re: How to reduce stimming

Posted: Mon Sep 25, 2017 4:54 pm
by i-jerry
Nikkie111 wrote:
i-jerry wrote:
Nikkie111 wrote:The only ones I saw results for acute (not sure about dormant/chronic) was elderberry extract, Chinese skullcap , fresh ginger juice and propolis liquid (absolutely disgusting!!) and high dose vitamin c or liposomal If possible x


Hi Nikkie, how much vitamin C do you give it to your older boy? I give him 1.5g per day, but thinking about more or liposomal vc


I'm giving 5ml Lipolife which is around 1gr... It's fantastic really strong but very expensive!


thank you Nikkie. We had lamberts Vc more than a year and didn't see much difference. I think it's time to change and I'll order it tomorrow. thanks again.

Re: How to reduce stimming

Posted: Tue Sep 26, 2017 12:17 pm
by FatherOf2
Those who are interested in reducing stims. I started my son on NAC-Sustain, 300mg 1x/day, 3 days ago. My son became much calmer, stims reduced significantly. NAC might have been a missing piece of a puzzle in my son supplement regime.