I am lost and desperately need help to fight yeast and constipation.

Discuss autism diets and biomedical treatments of autism.

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fo1d
Posts: 5
Joined: Thu Dec 29, 2016 4:07 pm

I am lost and desperately need help to fight yeast and constipation.

Postby fo1d » Fri Jan 06, 2017 9:50 pm

Hi,

I am a new member who joined this forum recently after discovering some useful discussions which showed up in google search.

Some background my daughters condition ( may be a bit lengthy and sorry about that )

My 27 month old daughter is diagnosed with ASD when she was 25 months old, although we had suspected something was wrong because

a) She developed food tolerance ( milk, proteins and variety of veggies/fruits ) after her first 2 month vaccination which never improved.
b) She didn't sleep well in the nights due to her food intolerances.
b) She crawled only when she was 9 months and started walking when she was 15 months old.
c) She didn't say mommy or daddy until she was 20 months old
d) She wasn't pointing at things. She had little interest in playing with stuffed toys or involved with other kids such as parallel play etc.,
e) She had stimming behavior i.e., rotates her both foots when gets stimulated/excited, liked clapping a lot, obsession with looking herself in the mirror, holding on to objects etc.,
f) She wanted to read books, flipping through the pages etc.,
i) Heavily on the constipated side.

Consulted Pedaiatric-GI but only to say that things will improve for most kids when they turn 1 but not much improved even when my daughter was 1 year.

My daughter hasn't never tasted sugar, candies, chocolates, ice-creams, cakes etc., since she intolerant to so many things etc., We never exposed her to processed foods other than when we started introducing solids, even then it was from EarthsBest organic food containers. Inspite of the above, she was good socially and had reasonable eye contact. Hence the pediatrician didn't suspect anything but only upon our insistence he referred us to Pediatric Behavioral Specialist, but only got an appointment 4 months later, so he asked us to get started with Early Start program in the meanwhile.

Instead of waiting for the Pediatric Behavioral Specialist 4 months down the road, we acted and got Veda started with Early Start program in providing ABA, OT sessions even before the appoint for her official Diagnosis, At the same we made the change in diet i.e.,

1) CFGFSFCF ( she was mostly caesin free anyway except for goats milk and yogurt which tolerated well, this was also eliminated ).
2) Introduced Animal Protein ( Turkey, Chicken, Fish sometimes ).
3) Gave her Fish oil from Nordic Naturals
4) Introduced Enzymes ( Omega-Zyme, TriEnza )
5) Pro-Biotics from Now
6) Super Nu Thera 0.5 ml a day ( with Vitamin B-6 )
7) Anti-Fungal such as Garlic, Fresh Oregano leaves from our backyard and a pinch/tadd of turmeric in to the food we gave her.
8) Epsom Salt Baths

The above change in diet and therapy for approximately 4 months improved the following things

1) She became verbal, she can now speak more than 200 words, can phrase 4-6 word sentences
2) Her cognitive skills dramatically improved, matching shapes etc., asking for things etc.,
3) She started pointing at things and name the ones she wanted to eat.
4) Started playing with Stuffed toys and sometimes started engaging us to play.
5) She repeats everything that you ask her to say.
6) She would follow 2-4 word commands etc.,

The improvement mentioned above was really mind boggling, even though she still had some stimming behaviors with rotating her feet etc., when getting excited and she was walking on toes on and off, occasional babbling, still intolerant to many veggies but we were excited to see the progress.

Everything was going good and we were excited until her yeast symptoms started showing up

1) Vaginal Infection ( She would grab her Vaginal area on and off )
2) itchiness around her knees
3) Being Silly when she someone new came to our house
4) Started going in Circle occasionally ( initially thought it's a 2 year old playing )

We felt the quantity of garlic and Oregano we were giving wasn't sufficient/effective as anti-fungals. So giving her more of these with each meal was also challenging because it's not pellet-able. Read through the forums and then started Pau D'arco tea ( got some fresh Pau D'Arco bark from whole foods, grounded them ). We didn't measure the dose but it was tadd/pinch ( less than 100mg is my best guess ) in a one big cup of water well boiled along with cumin powder. The one big cup water served for one day. We gave her this for one full week and started noticing improvements again with stimming, improved her focus etc., After one-two weeks on Pau D'Arco she started having loose stools ( learned that Pau D'Arco is laxative ), so we gave her a break from Pau D'Arco for a day and it appears that the yeast ( my guess ) flare up came back with Vengeance i.e., bu

a) Rashes on her knees
b) Started Spinning in circles

Hence we introduced Pau D'arco back but in half the dose we used previously but things worsened even though it addressed rashes on her knees and her stools became normal/predictable but made the following things worse

a) Started Giggling/laughing for no apparent reasons
b) Lack of focus and Cognitive function
c) Verbal Fluency deteriorated, babbles something.
d) Obsessions kind of started surfacing
e) Throwing Temper tantrums and crying on simple things.

All of the above mentioned behaviors happened in a matter of 3-4 days, after the break and re-introducing Pau D'Arco. Upon reflecting on what happened, me and my wife thought when Administering Pau D'arco during the first week, it wiped out all the good bacteria ( that we had worked hard to build in the past 3-4 months ) along with the bad ones, and when we gave her a break the yeast/bad bacteria flourished as there was nothing else to counter or keep them on check. The other thing that we did was that we gave her pro-biotics at the same time as we administered anti-fungals, so essentially the pro-biotics didn't have any effect because it got killed because of the Pau D'Arco Anti-Biotic which may have been relatively stronger than other anti-fungals we have administered before.

So we are (mild expletive removed) scared to go back to Pau D'Arco with out a plan on rebuilding her good bacteria. Upon reading further, we found out that Cat's Claw is milder and safer to good bacteria than Pau D'Arco and is also a immune stimulator which uses the body's immune system to go after the bad bacteria/fungus. The other theory I had is that Yeast may have flared up because of weak Immune system and since Pau D'arco is immune modulator and anti-biotic, so it may not have been a good choice though it has good properties ( it's just a guess on my part but I could be wrong ) for my kid ( it's just an hypothesis ).

So I switched from Pau D'Arco to Cat's claw ( 100mg per dose and 3 times per day, since my 2 year old daughter probably weighs around 22 lbs, came up with dose based on the posts from TamiW who was administering 1000mg for her boy who weighs 100Lbs ).

Right before I started giving cat's claw, I also gave my daugther biotin ( 100mcg /day ) and magnesium ( Thorne Brand - 10-15mg/day ) supplements in addition to the above.

Interestingly after giving the first dose of cat's claw, much of the above mentioned behaviors didn't show up in the first day but in the second day on cats claw, some of them have started appearing sporadically again. I am afraid if this will get worse from here and it's painful to watch my daughter in that state. Also she is also now constipated, bloated, she had two bowel moments yesterday ( hard and very little ) and she had a pellet stool earlier today.
Usually eating a banana would help with her bowel movements but given her yeast issue ( atleast suspicion ), since we are limiting her sugar in take even through fruits it's hard not to give her any other fruit especially banana when she asks for it. We already give epsom salt baths and have increased greens in her soup but hasn't helped much.


I have an appointment with a doctor who practices BioMedical/Integrative Medicine on Jan-23rd but not sure I can sit put until I go meet.
Hence wanted to reach out to the community to see if there is anything else that is safe which I should be doing to fight yeast and also constipation. Desperately need advice or suggestions.

I apologize for the lengthy post but wanted to provide some context as well while seeking advise.

jaumeb
Posts: 167
Joined: Fri Mar 25, 2016 10:48 am

Re: I am lost and desperately need help to fight yeast and constipation.

Postby jaumeb » Sun Jan 08, 2017 4:27 pm

What does your diet look like? I use lentils, potato, buckwheat and quinoa.

I recommend reading the following approaches that are somewhat contradictory:
- feast without yeast
- nourishing traditions

fo1d
Posts: 5
Joined: Thu Dec 29, 2016 4:07 pm

Re: I am lost and desperately need help to fight yeast and constipation.

Postby fo1d » Sun Jan 08, 2017 7:56 pm

The Diet is pretty much made up of a combination of greens ( Kale/Spinach/Chard/Mustard ), asparagus, carrots, green beans, some onion, peas along with Turkey/Chicken in the soup ( made with chicken stock ) and little quantities of brown/white rice with mung dal soup ( soaked ) for lunch/dinner. Breakfast are made up of Indian version of Pan Cake ( made up of rice/teff flour ).

Looks like the constipation issue is resolved for now, since yesterday my DD is having 2-3 BM's. We made her drink more water than usual which helped with constipation. We still need get a grasp on the yeast since my DD still has bad breadth, giggling ( not uncontrollably ) , stimming behaviors etc.,

I think we now have a better understanding of what might have happened just before we switched from Pau D'arco to Cat's claw. My wife confirmed that she was giving beet/Swiss Chard/Parsley greens as part of the soup which appears to be high in oxalate ( didn't realize at the time ) which cause my daughter to regress instantaneously loosing her focus, verbal fluency, throwing tantrums, anxiety etc., The following day when we switched to Cat's claw, unintentionally my wife didn't add the greens high in oxalate ( we didn't see the connection then ) and we noticed the improvements almost immediately but then again when my wife added Swiss Chard/Spinach to her diet yesterday, some of the same symptoms returned but kind of tapered down later in the day after administering her pro-biotics which we now typically do 2-3 hours after her afternoon meal. So I have a strong suspicion that her behaviors, brain fog, verbal fluency, loss of focus was due to oxalate sensitivity which may be due to the fact that all the good bacteria in her gut may have been depleted after we started her on Pau D'Arco. I have to now figure out how to boost her gutflora with beneficial bacteria at the same time as administering anti-fungals for treating yeast which could be tricky.

I might start a new post in the BioMed forum for input on the oxalate sensitivity and yeast since it's a challenge as my DD's diet is already so restricted, this will make the restrictions even more worst.

jaumeb
Posts: 167
Joined: Fri Mar 25, 2016 10:48 am

Re: I am lost and desperately need help to fight yeast and constipation.

Postby jaumeb » Mon Jan 09, 2017 5:02 am

I avoid white rice. I use quinoa or buckwheat instead.

I used a low oxalate diet for years with little results. You can substitute lettuce for chards and spinachs as lettuce is low oxalate.

I also use some extra virgin coconut oils for its antifungal properties. I started with a single drop and now I use half a teaspoon.

makingitpossible
Posts: 1260
Joined: Mon Nov 12, 2012 10:25 am

Re: I am lost and desperately need help to fight yeast and constipation.

Postby makingitpossible » Tue Jan 10, 2017 8:38 am

We lost our daughter trying to kill everything for almost 2 years. It may work for some but I cringe at the thought of trying to kill things. We recently went to a new biomed doctor who continued to tell us to kill everything in her gut even though we told her she is much higher functioning when we don't mess with it. She recommended LDI (low dose immunotherapy) to us. We had our appointment last week and will start this week.
The thought is the immune system has to both fight infection and tolerate the environement both internally and externally. The therapy stemmed from the concept of low dose allergy treatments. Now it is used with lyme, candida, etc. It is another option you may be interested in. Google Dr. Vincent and LDI if interested. It is a way of looking at things so the immune system can both tolerate candida and have normal levels of it.

autismnhusa
Posts: 247
Joined: Mon Sep 20, 2010 12:14 pm

Re: I am lost and desperately need help to fight yeast and constipation.

Postby autismnhusa » Thu Jan 12, 2017 2:10 pm

You need to reset your kid's stomach. No more bio/supplement garbage. Don't play with fire. In my son's case, my son did not eat any anything for 3 days but only with water. For another 7 days, he only took a plain rice soup with a bit salt. No more violence after that.

fo1d
Posts: 5
Joined: Thu Dec 29, 2016 4:07 pm

Re: I am lost and desperately need help to fight yeast and constipation.

Postby fo1d » Sun Apr 02, 2017 3:36 am

makingitpossible wrote:We lost our daughter trying to kill everything for almost 2 years. It may work for some but I cringe at the thought of trying to kill things. We recently went to a new biomed doctor who continued to tell us to kill everything in her gut even though we told her she is much higher functioning when we don't mess with it. She recommended LDI (low dose immunotherapy) to us. We had our appointment last week and will start this week.
The thought is the immune system has to both fight infection and tolerate the environement both internally and externally. The therapy stemmed from the concept of low dose allergy treatments. Now it is used with lyme, candida, etc. It is another option you may be interested in. Google Dr. Vincent and LDI if interested. It is a way of looking at things so the immune system can both tolerate candida and have normal levels of it.


Just wondering if you had any progress with LDI?


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