help with new diagnosis.

Discuss autism diets and biomedical treatments of autism.

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fay
Posts: 13
Joined: Sat Jun 03, 2017 11:43 am

help with new diagnosis.

Postby fay » Mon Jun 05, 2017 3:15 am

Our 2 ½ year toddler is getting tested in 2 weeks. We are so overwhelmed at the amount of information and how to help him. We feel so guilty for missing the signs and attempted to explain away lot of these behaviors (minimal eye contact, inattentive, repetitive clapping, babbling, reclusive with kids). We knew something was wrong but attributed to developmental delay or his personality. The pediatrician showed no concerns as well and played perfectly in our denial mode. No Family history of ASD. We finally accepted he has issues and started making changes 2 month ago. We got him in early intervention program. Right now, he is doing speech therapy twice a week and sensory therapy once a week.

should we start with diet first? We switched his milk to silk almond milk and changed his cheeze to veggie cheese. we are gradualy working toward the gluten free, casein free diet. Can you still benefit if you elimente (casein,gliten and soy) 90% from the diet?

do we have him tested first or start any other biomed treatment? Only Gi issue he has is constipation occasionally but wheat bread and injecting greens (spinish, and bolt house green goodness juice) tokes care of that but going gluten free will elimnate his favorite staple of wheat bread. Anu suggestions would be great for a new confused and overwhelmed parents.

riggie
Posts: 38
Joined: Fri May 20, 2011 7:18 am

Re: help with new diagnosis.

Postby riggie » Mon Jun 05, 2017 9:22 am

Hi Fay - The elimination of gluten, casein and soy really needs to be 100%. Try to focus on whole foods (not packaged/processed) with plenty of vegetables, fruits and meats. Shop in the perimeter of the supermarket and not down the aisles. The diet seems like a daunting task to eliminate the preferred foods, but take it gradually and it will happen.

Best single resource for information is TACA. Start here: https://www.tacanow.org/newly-diagnosed/

Nikkie111
Posts: 310
Joined: Thu Sep 24, 2015 6:26 am

Re: help with new diagnosis.

Postby Nikkie111 » Mon Jun 05, 2017 10:27 am

Yes definitely 100% gluten/dairy/soya/corn free, if you have to give grains soak them first (softer on the gut), and possibly look into giving some basic Antivirals like eldeberry when he's actually getting a virus as it will stop it from going to the cells.
We actually stopped our 2,5 yo from regressing massively every time he was getting a virus!

Good luck X

fay
Posts: 13
Joined: Sat Jun 03, 2017 11:43 am

Re: help with new diagnosis.

Postby fay » Wed Jun 07, 2017 4:44 pm

Its hard finding mutigrain bread gluten free and soy free. He gets constipation issue with white bread. We finally found multi grain bread from artisan baker. The gluten free bread from walmart wasn't frozen but it has soy protein in it. :). May have to use it until we figured the soy part.

Grandmother
Posts: 46
Joined: Tue Jun 21, 2016 7:47 pm

Re: help with new diagnosis.

Postby Grandmother » Wed Jun 07, 2017 7:25 pm

Hi Fay.  Check the ingredients of everything, including that green juice and that bread.  Many additives are code for free glutamate.  You're starting where my daughter started, looking for processed gluten-free food.  To replace the bread, try making butternut squash pancakes, almond flour muffins, banana bread, pumpkin bread, etc.  Look for SCD compliant recipes, they're all over the internet and even on this message board.  You'll find some processed things that are fine like LaraBars and Applegate hotdogs.

Here is a diet link to TACA, the site recommended by Riggie:
https://www.tacanow.org/family-resources/gfcfsf-diet/
Many start with also eliminating corn, oats, and all food additives.

Grandchild was very severe and needed more than the above eliminations.  Here are links to the SCD diet, adapted for autism by also eliminating dairy.  Among other things, it eliminates all grains.  As already mentioned by Nikkie, they can be hard to digest:
http://www.breakingtheviciouscycle.info ... -problems/
http://www.breakingtheviciouscycle.info ... k-chapter/
http://www.breakingtheviciouscycle.info/legal/listing/

Here is the REID diet.  Dr. Reid (a biochemist) cured her child by eliminating free glutamate and started a non-profit several years ago to spread the word.  She explains the problem with gluten, pasteurized dairy, processed food, food additives, and how to shop:
http://unblindmymind.org/2013/02/free-v ... lutamates/
https://www.youtube.com/watch?v=7jJj9W4uF_4

I think you'll be surprised what your child will eat when he's offered old-fashioned, unprocessed, organic food without additives.  Best wishes.

fay
Posts: 13
Joined: Sat Jun 03, 2017 11:43 am

Re: help with new diagnosis.

Postby fay » Wed Jun 07, 2017 11:28 pm

Thank yu so much. our prayers are with your grandson. i am going to start baking bread for first time next week. i failed to find a bread that will work with his gfcfsf diet and does not aggravate his constipation as well.so many diets, how do you decide which one to follow? our son has only has occasional constipation if he is not eating his wheat bread and eating his spinish. Anything wrong with bolthouse green goodness juice? (PINEAPPLE JUICE FROM CONCENTRATE (WATER, PINEAPPLE JUICE CONCENTRATE), APPLE JUICE FROM CONCENTRATE (WATER, APPLE JUICE CONCENTRATE), MANGO PUREE FROM CONCENTRATE (WATER, MANGO PUREE CONCENTRATE), BANANA PUREE, KIWI PUREE, SPIRULINA, NATURAL FLAVOR, CHLORELLA, ZINC SULPHATE, GREEN TEA, SPINACH, BROCCOLI, VITAMIN C)

Grandmother
Posts: 46
Joined: Tue Jun 21, 2016 7:47 pm

Re: help with new diagnosis.

Postby Grandmother » Thu Jun 08, 2017 1:37 pm

Fay, thankfully my granddaughter is cured.  No one would ever now know that she once had what they're calling severe incurable regressive autism and co-morbid severe constipation.  All of the diet links above start with the same basic elimination of gluten and casein, then more is eliminated for the others.  Which diet you choose depends on you and your child really, just the basic gluten, dairy, and soy, or also then eliminating all glutamate like the REID diet, or then also eliminating grains and more like the SCD.

Daughter started with a nutritionist and saw improvement eliminating gluten, dairy, soy, corn, oats, and all food additives, but it wasn't enough so she researched and decided to go on to the SCD diet.  She liked the science behind it, that it was designed to be easy to digest, and it's also the strictest diet and eliminates the most.  Oh, she didn't do the SCD intro diet, no gelatin, broth, etc., which we found out later would have a lot of glutamate.  Grandchild regressed early on after accidentally ingesting free glutamate in sliced turkey, didn't know about Dr. Reid at that time, but I can verify that glutamate caused a regression for grandchild and it's in everything these days so read every label.

The thing that jumped out at me about the juice is the "natural flavors".  Watch Dr. Reid's video link, "natural flavors" is code for added free glutamate.  Also apple juice, chlorella, and spirulina aren't permitted on SCD diet, the reasons are on the SCD food list (link above).  I don't even know what zinc sulphate is.
 
Best wishes for the testing.

Creatineman
Posts: 40
Joined: Tue Jun 13, 2017 7:13 am

Re: help with new diagnosis.

Postby Creatineman » Tue Jun 13, 2017 10:50 am

I'd say casein free but not gluten free because one needs all the fibre found in wheat, and other gluten foods.
Last edited by Creatineman on Mon Jun 19, 2017 1:51 am, edited 1 time in total.

bhawin
Posts: 15
Joined: Thu Jun 15, 2017 2:56 pm

Re: help with new diagnosis.

Postby bhawin » Fri Jun 16, 2017 4:40 pm

We are in the same boat. We started EI 2 months back and got official diagnosis yesterday.

We are starting off with GAPS full diet. I m hoping to get recommendations for Biomedical doctors. Were you able to get any suggestions? If so, can you please provide that info.


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