Winnie wrote:Wait – but on your point of anecdotal information --......So, even when some children show some improvements, do these improvements rise to the level of Neubrander’s hype?
The parameters of the study posted by Rick, if I remember correctly, were the result of an 8 week study period. I would not dismiss the reported benefits as insignificant.
In terms of anecdotal information, again, I place a great deal of weight on it. We have little choice. There is basically no research conducted on the biomedical interventions for autism. It is not a matter of ignoring data but that its never produced in the first place. For my part, I don't even waste much time reading the latest in autism research since it provides very little actionable information. We know what works behaviorally and the discovery of some new 'gene' or 'complex' of genes actually is just rehashing old territory--for the most part. Besides, I think that the genetic basis (in terms of genes alone) of autism is massively exaggerated.
In the case of the B12, I can only speak from my own experience. I introduced the B12 on the standard 3 day interval. I saw minor improvements. I started doing it ever other day. Again, minor improvements. Anyway, for reasons not worth explaining, I went a month without giving him any shots. There was a regression in speech, though I think this was caused by factors beside the cessation of the B12 shot. I then started giving him a B12 shot on a daily basis. I saw a more marked improvement in attention and some improvement in speech. Since I saw such an improvement with the daily administration of the B12, I spoke with his DAN and asked that the we increase--experimentally--this daily dose to twice what is given in the Neubrander protocol. My son has now been doing this for a little over a month and a half and I've seen a lot of improvements, far more than what he'd experienced under any other cycle.
My son was a responder even at the lower levels of B12, but it did not seem to make dramatic difference. It took a lot of experiment to find a dose that really showed a 'big' improvement in a short amount of time. So, to answer your question, this higher dose of B12 given on a daily basis definitely lives up to the 'hype'. Except, it is not hype. It is not an exaggeration but simply the result of my own experience as a father trying to help his son. If I had not experimented with the timing and dosage I would never have found it.
I think it is important for parents to try different interventions--provided that they actually make sense of their child's developmental needs, history, and genetics.
BTW, the first week that I gave my son the B12 at the higher dosage, he woke up at 2 a.m. and stayed up until 4 a.m. It took a few days for his body to adjust, but he's done very well.
At any point, I could have just given up on administering the B12 shot, but it always made sense. I would have just tossed it out because of the inconvenience it caused me the first week. But again, I think it is important to persist.
I'm very glad that I've pursued biomedical interventions with my son. I'll take anecdote and experiment over the standard 'recommendations' any day of the week.