Dateline: Irresponsible reporting

Discuss autism theories, media stories, and efforts to put ASD on the government agenda here.

Moderator: ModeratorBill

Forum rules
Please limit quotes from articles to five paragraphs. Also, researchers may post study information here.
dgdavis64
Posts: 5241
Joined: Sun Mar 20, 2005 11:51 pm

Dateline: Irresponsible reporting

Postby dgdavis64 » Mon Jun 05, 2006 2:15 pm

Now I have people calling telling me "a boy died from that treatment you're doing" didn't you hear about it?

I'm glad that Dateline did this story, but if they were going to bring up the little boy who died, they should've been responsible enough to tell his complete story. Not try to sensationalize the circumstances of his death.

This just adds fuel to the fire for the people who think we're all just a bunch of nutcase parents.

I can't wait for the results of the study that Jim Adams (I think that's his name) is doing but I'm sure if the results end up in his favor, that they'll be discounted and debunked because he was the one conducting the study. Nevermind that no one else/organization is willing to do this type of study.

Beware of the pharma trollbot shills posting from anonymous proxy servers

srinath
Posts: 941
Joined: Tue Dec 20, 2005 12:33 pm

Re: Dateline: Irresponsible reporting

Postby srinath » Mon Jun 05, 2006 3:45 pm

dgdavis64 wrote:Now I have people calling telling me "a boy died from that treatment you're doing" didn't you hear about it?

I'm glad that Dateline did this story, but if they were going to bring up the little boy who died, they should've been responsible enough to tell his complete story. Not try to sensationalize the circumstances of his death.

This just adds fuel to the fire for the people who think we're all just a bunch of nutcase parents.

I can't wait for the results of the study that Jim Adams (I think that's his name) is doing but I'm sure if the results end up in his favor, that they'll be discounted and debunked because he was the one conducting the study. Nevermind that no one else/organization is willing to do this type of study.


That is like blaming the bullet for the murder ... makes perfect sense too ... yea ...
Cool.
Srinath.

gdv2500
Posts: 723
Joined: Mon Aug 29, 2005 3:59 pm

Postby gdv2500 » Mon Jun 05, 2006 4:38 pm

I got the feeling that the whole piece was edited pretty severely. I thought the same thing, though, that the fact that the death in question was caused from a DRUG MIXUP was not even touched on and should have been.
Gary - Cameron's Dad

bluesky74

Write to Dateline...

Postby bluesky74 » Mon Jun 05, 2006 10:05 pm

Dear All,

I just wanted to say, please write to them about this segment if you haven't already...

Meg (7 yr old ID twin boys w/ Hg poisoning, aka PDD-NOS)

sashasmom
Posts: 1788
Joined: Tue Sep 20, 2005 7:03 pm

Postby sashasmom » Wed Jun 07, 2006 9:20 am

My mom flipped out when she saw the part about the child who died from IV chelation b/c we are starting it in July. However I had already sent her the story back when it happened and it was revealed that it was the doctor who ordered the wrong chelator. It is sad that they only mentioned a small percentage of what happened. But maybe that will help the parents who are looking for anyone who is willing to do IV with their child at a cheap price to be more cautious and research into the physician more. Make sure the doc knows what they are doing and has a reputation for IV chelation in children.

give a mouse a cookie
Posts: 143
Joined: Wed Apr 05, 2006 12:40 pm

Postby give a mouse a cookie » Wed Jun 07, 2006 12:49 pm

I am glad glad glad that they pointed out the potential dangers of IV chelation. If it saves even one child's life, it is relevant and important, not irresponsible. Especially if it your own child.

LittleManzParents
Posts: 2317
Joined: Fri Apr 21, 2006 4:27 am

Postby LittleManzParents » Wed Jun 07, 2006 12:56 pm

I think we're all glad glad glad when people are cautioned not to proceed recklessly when it comes to any medical procedure, particularly those involving children.

Sasha's mom: Great way to find the positive in a less-than-accurate report on the issue.

dgdavis64
Posts: 5241
Joined: Sun Mar 20, 2005 11:51 pm

Postby dgdavis64 » Wed Jun 07, 2006 4:04 pm

Now that I think about it, I'm glad too. I get a chance to explain to people what really happened to that little boy. And also let people know HOW MANY children die each year from vaccine reactions. Much more than people realize.

Beware of the pharma trollbot shills posting from anonymous proxy servers

mom_of_an_autie
Posts: 734
Joined: Sat Apr 01, 2006 6:18 pm

Postby mom_of_an_autie » Wed Jun 07, 2006 5:30 pm

Hey all I found this on msnbc for anyone ineterested


June 2, 2006 | 4:33 p.m. ET

The unorthodox practice called chelation (Alexandra Gleysteen, Dateline producer)

I may be a network news producer, but first and foremost, I’m a mother. I only have one child, a boy born in 1992. That’s just around the time the autism rates began to soar, especially here in California where I live. Some say the new big numbers—(one in 175 American children could be diagnosed this year compared to the 1980’s when it was 1 in 10,000 kids)--simply reflect the fact that more children are labeled autistic today because we recognize the condition. But others argue there’s just more autism around and that nobody knows why. All I know is that back when my son was born, people started talking about this mysterious condition called autism. And with boys being almost four times as likely to be diagnosed as girls, I began to pay attention.

So why do a story 13 years later on an obscure and unorthodox practice called “chelation”? Maybe it’s because a lot of parents of autistic children have reported that removing heavy metals from their children’s systems made their boy or girl’s life a little bit better. Some parents claim their daughter’s language improved or that they finally toilet trained their son, or perhaps it was just a sense that “the fog” isolating their child from the “real” world lifted a little bit. We heard even more dramatic claims that chelation had helped “cure” children of autism. Now, it may or may not be true, but you can understand why parents would want to believe something good could happen for their children. We learned early on in this story that the parents of autistic children rarely give up.

Parents like Jim Adams, a professor of chemistry at Arizona State University. I think that if I were an autistic child, he’d be the kind of father I’d want to have. He sees beyond convention, but uses reason, and he is totally devoted to children with autism. In today’s vernacular, he’s got their back.

When Jim and his wife, Marie, learned that their daughter Kim was autistic, their reaction was pretty normal. They grieved when doctors predicted a depressing future for their two year old, one without language, independence, friendship or hope. But they quickly rallied and became incredible advocates and activists for their autistic child.

One of the first things Jim did when he got the news about Kim was to trade in the study of materials engineering for the study of heavy metals and brain chemistry. Today he’s considered an expert on how vitamins and minerals interact with the brain, especially autistic brains. Marie and Jim have changed almost every other aspect of everyday life as well: from how they schedule their days (by putting Kim’s endless needs for tutoring, therapy and treatment first), to how they clean their house (no chemicals that could upset Kim’s sensitive system), to how they eat (lots of protein and no wheat for Kim.)

Being around them while shooting this story, you can tell that they don’t consider these changes in lifestyle an obligation. It’s just another expression of their love for a girl doctors wrote off years ago. And by the way, they’ve proven those doctors wrong. While Kim’s future is still uncertain, the fact is that at twelve, she still lives at home, communicates with language, plays games with her older sister, rides a bus to school and hugs you endlessly.
We met Jim and his family because of his latest endeavor. Along with a doctor named Matt Boral from the Southwest School of Naturopathic Medicine, Jim is on a quest. He wants to help answer a really explosive issue in the world of autism research: Do heavy metals, particularly mercury, play any part in causing autism—and/or does removing mercury from the body improve an autistic child’s health? Mercury is a known neuro-toxin and is found all around us, especially in pollution. But there is enormous controversy surrounding one particular source: childhood vaccines. Until it began being phased out of infant vaccines a few years ago, most childhood vaccines contained a preservative called thimerasol, which is primarily mercury. Many parents believe that it was routine vaccinations that helped precipitate their children’s autism.

That is not the position of government agencies, including the CDC and NIH, nor major scientific organizations, like the American Academy of Pediatrics. They maintain science has clearly established that there is no link between mercury from vaccines and autism. But somehow the question never dies, in part because activist parents question the government’s original research into the matter.

Jim Adams knows he’s stepping into what so far has proven to be a political and medical minefield, but as a scientist he says he’s just forging ahead. He’s conducting the first double blind, placebo controlled study on chelation, in which he’ll follow 80 autistic children to see if their health and behavior improve once they’ve rid their bodies of heavy metals, including mercury. If chelation helps them, the study will help chip away at the mainstream scientific view that mercury isn’t related to autism. If chelation doesn’t have any impact on them, Jim figures he’s helped put the issue to rest. But in either case, he says he’ll feel good knowing he’s advanced our understanding of autism.

Whether you are a parent of an autistic child, or just a producer reporting on one, you can’t help but admire people who’ve put aside anger or self-pity, and instead moved on to lead lives of curiosity, purpose and dedication. Which perhaps goes back to the original question about why 13 years later, I find myself doing a story on chelation. Why wouldn’t I? We all want the answers.

Dateline will follow up to see what happens as the study concludes sometime in the winter of 2006.

sashasmom
Posts: 1788
Joined: Tue Sep 20, 2005 7:03 pm

Postby sashasmom » Wed Jun 07, 2006 5:32 pm

Great post mom_of_an_autie. Thanks!!!

dgdavis64
Posts: 5241
Joined: Sun Mar 20, 2005 11:51 pm

Postby dgdavis64 » Wed Jun 07, 2006 6:11 pm

HISTORICAL FACTS EXPOSING THE DANGERS
AND INEFFECTIVENESS OF VACCINES

Compiled by Ian Sinclair


* In 1871-2, England, with 98% of the population aged between 2 and 50 vaccinated against smallpox, it experienced its worst ever smallpox outbreak with 45,000 deaths. During the same period in Germany, with a vaccination rate of 96%, there were over 125,000 deaths from smallpox.

* In Germany, compulsory mass vaccination against diphtheria commenced in 1940 and by 1945 diphtheria cases were up from 40,000 to 250,000. (Don't Get Stuck, by Hannah Allen)


* In the USA in 1960, two virologists discovered that both polio vaccines were contaminated with the SV 40 virus which causes cancer in animals as well as changes in human cell tissue cultures. Millions of children had been injected with these vaccines. (Med Jnl of Australia 17/3/1973 p555)

* In 1967, Ghana was declared measles free by the World Health Organisation after 96% of its population was vaccinated. In 1972, Ghana experienced one of its worst measles outbreaks with its highest ever mortality rate. (Dr H Albonico, MMR Vaccine Campaign in Switzerland, March 1990)


* In the UK between 1970 and 1990, over 200,000 cases of whooping cough occurred in fully vaccinated children. (Community Disease Surveillance Centre, UK)


* In the 1970's a tuberculosis vaccine trial in India involving 260,000 people revealed that more cases of TB occurred in the vaccinated than the unvaccinated. (The Lancet 12/1/80 p73)


* In 1977, Dr Jonas Salk who developed the first polio vaccine, testified along with other scientists, that mass inoculation against polio was the cause of most polio cases throughout the USA since 1961. (Science 4/4/77 "Abstracts")


* In 1978, a survey of 30 States in the US revealed that more than half of the children who contracted measles had been adequately vaccinated. (The People's Doctor, Dr R Mendelsohn)


* In 1979, Sweden abandoned the whooping cough vaccine due to its ineffectiveness. Out of 5,140 cases in 1978, it was found that 84% had been vaccinated three times! (BMJ 283:696-697, 1981)


* The February 1981 issue of the Journal of the American Medical Association found that 90% of obstetricians and 66% of pediatricians refused to take the rubella vaccine.


* In the USA, the cost of a single DPT shot had risen from 11 cents in 1982 to $11.40 in 1987. The manufacturers of the vaccine were putting aside $8 per shot to cover legal costs and damages they were paying out to parents of brain damaged children and children who died after vaccination. (The Vine, Issue 7, January 1994, Nambour, Qld)


* In Oman between 1988 and 1989, a polio outbreak occurred amongst thousands of fully vaccinated children. The region with the highest attack rate had the highest vaccine coverage. The region with the lowest attack rate had the lowest vaccine coverage. (The Lancet, 21/9/91)


* In 1990, a UK survey involving 598 doctors revealed that over 50% of them refused to have the Hepatitis B vaccine despite belonging to the high risk group urged to be vaccinated. (British Med Jnl, 27/1/1990)


* In 1990, the Journal of the American Medical Association had an article on measles which stated " Although more than 95% of school-aged children in the US are vaccinated against measles, large measles outbreaks continue to occur in schools and most cases in this setting occur among previously vaccinated children."(JAMA, 21/11/90)


* In the USA, from July 1990 to November 1993, the US Food and Drug Administration counted a total of 54,072 adverse reactions following vaccination. The FDA admitted that this number represented only 10% of the real total, because most doctors were refusing to report vaccine injuries. In other words, adverse reactions for this period exceeded half a million! (National Vaccine Information Centre, March 2, 1994)


* In the New England Journal of Medicine July 1994 issue a study found that over 80% of children under 5 years of age who had contracted whooping cough had been fully vaccinated.


* The CDC states that 135 children died during the 2003-2004 flu season. 59 of these children had received their flu shots.


* On November 2nd, 2000, the Association of American Physicians and Surgeons (AAPS) announced that its members voted at their 57th annual meeting in St Louis to pass a resolution calling for an end to mandatory childhood vaccines. The resolution passed without a single "no" vote.

Beware of the pharma trollbot shills posting from anonymous proxy servers

Mary
Posts: 472
Joined: Fri Feb 25, 2005 8:28 am

Postby Mary » Wed Jun 07, 2006 8:57 pm

give a mouse a cookie wrote:I am glad glad glad that they pointed out the potential dangers of IV chelation. If it saves even one child's life, it is relevant and important, not irresponsible. Especially if it your own child.


Mouse, maybe you missed an earlier post on this, but the point that was being made was that the story omitted the fact that the child was given the wrong drug. He died from a medical mistake. Certainly, if you do IV chelation, or if your child is given any drug for any reason, you would want your child to get the RIGHT drug.

BTDT
Posts: 3492
Joined: Tue Dec 20, 2005 8:02 pm

Postby BTDT » Wed Jun 07, 2006 9:15 pm

Certainly, if you do IV chelation, or if your child is given any drug for any reason, you would want your child to get the RIGHT drug.


Yes, and as Sashasmom pointed out it is wise to find a doc who is experienced and knows what they are doing. Otherwise, serious and fatal mistakes can be made. Some of these folks do seem to be in it just to make a buck.

mouseker
Posts: 1004
Joined: Wed Mar 02, 2005 7:22 pm

Postby mouseker » Thu Jun 08, 2006 10:48 pm

It can be difficult to find one who does know, being a layman how do I find out who is experienced in chelation and who is new to it. Although it has been around for many many years for lead poisoning so it isn't a new procedure or process (althought there are some new variations on it) it's application in regards to mercury is what is new.

I have to agree with Mary it wasn't the chelation that killed this little boy it was a medical mistake and Dateline MOST CERTAINLY should have included that information. By holding this back they drastically slanted the story making one medical mistake create fear in an unknowable number of parents regarding this process. And yet if the child has lead poisoning there is no issue chelation is automatically prescribed.

As the number of autistic children grows we will see more and more general population events (person) into the autism society things like medical mistakes and parents killing their kids. None of this is new it's been going on in our society for years. It's just that now it's news if it happens to a child with Autism.

sashasmom
Posts: 1788
Joined: Tue Sep 20, 2005 7:03 pm

Postby sashasmom » Thu Jun 08, 2006 11:48 pm

When deciding that we were going to do IV chelation with Sasha the only person I trusted to do it was Bradstreet b/c of the amount of children he has successfully done IV with. I have heard good and bad stories with him however I am knowledgable enough to only allow low and slow and do no more than one a week for a few weeks.

Now our DAN! has agreed to do IV with my son and I trust him. He will be doing rounds with Bradstreet this month and getting more familiar with how the children react during the process. Getting a good IV stick is one key to it being successful (as long as you have the right chleator medication :wink: ). We plan to have Sasha's IVIG nurse go with us if the person he found in Cookville does not do a good stick. He is going to observe an IV in a child with her to make sure she is a good stick.

Anyway my point is yes it is hard and time consuming to filter through the good and the bad but you have to do it. It's not too hard finding leads on message boards like this one and CK2 to find a doctor who does IV chelation. But you have to talk to anyone and everyone you can to get the good and bad results of those doctors. 1 bad experience doesn't make them a bad doctor but you have to use common sense along with your gut feeling.

Research doesn't mean find an article on the doctor and run with it. It means getting on 10 boards and finding out the scoop on everything you can and getting knowledgable about what chelators should be used and questioning the doctor. That will make it a more successful experience. Not all IV chelation experiences are bad. I have only heard of a few and all but 1 have been doctors who were not experienced in IV chelation but were charging several hundred $'s less than Bradstreet. 4 weeks of IV chelation at Bradstreet's is going to roughly cost you $5000 (that includes testing, and glutathione IV's as well). 1 mom I know got priced $2000 for the same amount of treatments she could have got at Bradstreet's for $5000. That didn't include the stay. Didn't know a thing about the doctor and she went anyway. The nurse couldn't even get the IV in her son so they cancelled the treatment. I can see where a someone desperate would consider the cheaper amount, it should be the same medication right. Wrong. Maybe so but you never know until you get there as to if the doc knows what they are doing or not.

Ask questions and be cautious. I think that most all parents have that common sense thing down to a "T" but there are a handful out there that just don't really know what they're doing and how to go about IV the safe way. Maybe I just think that people should have more common sense but some people out there just don't. I could totally see my sister being one of those persons.

osemotelak

Postby osemotelak » Fri Jun 09, 2006 3:27 am

Really great stuff. This is exactly what i was looking for. Thanks!

BTDT
Posts: 3492
Joined: Tue Dec 20, 2005 8:02 pm

Postby BTDT » Fri Jun 09, 2006 10:41 am

And yet if the child has lead poisoning there is no issue chelation is automatically prescribed.



http://www.emedicine.com/EMERG/topic293.htm
The treatment of lead poisoning is separating the child from the source of lead exposure. Chelation is used only when separation fails to drop the lead fast enough or far enough or when the lead level is in the potentially encephalopathogenic level (>60 mcg/dL).


http://www.hsph.harvard.edu/Organizatio ... lation.htm
Chelation therapy for lead poisoning has been used for more than 40 years1 to increase urinary excretion of lead in the blood and decrease total body burden. The use of chelation therapy for the treatment of elevated blood lead levels (EBLLs), however, is not without controversy. While the method of chelation is well established, the agents, dosing, and indications are seldom clear-cut. In addition, there is little evidence that the treatment of lead-exposed children improves long-term neurological outcomes that removal from the leaded environment alone would not. The introduction of a new oral chelating agent and revised guidelines from the Centers for Disease Control and Prevention (CDC), which lowered the blood lead level (BLL) of concern in children, have together reignited the debate around the treatment and management of lead poisoning in children.

srinath
Posts: 941
Joined: Tue Dec 20, 2005 12:33 pm

That was unclear

Postby srinath » Fri Jun 09, 2006 10:50 am

That was a bit unclear ... does the CDC say their treatment of lead exposure is not clear cut ... as in yes chelation ... but what other procedure and what dosing and what not ... that is unclear ... is that what they are saying.
In any case using the CDC as a credible source is a bit like walking on thin ice ... however they are not saying do not chelate, or lead doesn't hurt ... which they say in case of mercury ... They are just saying that chelation is not straightforward.
And of course someone who isn't excreting lead, might excrete if chelated ... and EDTA will pull lead well, and its a food additive ... Ice tea mixes have it.
Cool.
Srinath.

sashasmom
Posts: 1788
Joined: Tue Sep 20, 2005 7:03 pm

Postby sashasmom » Fri Jun 09, 2006 10:57 am

our children's Baby shampoo's have EDTA as well.

srinath
Posts: 941
Joined: Tue Dec 20, 2005 12:33 pm

Everything

Postby srinath » Fri Jun 09, 2006 11:05 am

Its in everything. Calcium EDTA will pull out lead. Dont know what you have to add in as nutrition.
Cool.
Srinath.


Return to “Autism Articles, Studies & Politics”